This section of the website describes the IWMF research program. IWMF funding for research has helped to provide insight into understanding the basic biology and genetics of WM. This research in turn has played a significant role in the development of treatments and treatment guidelines in current use, as well as potential new drugs still in the pipeline. The goal of our research program is to improve quality of life for WM patients, and ultimately, discover a cure.
You can find general information about many of these drug treatments here and fact sheets about several drugs currently being used here. Additional discussion about recent research discoveries and their impact on new drug development can be found here. Clinical trials are also an essential part of medical research, and patients may want to consider participating in clinical trials where appropriate. More information about clinical trials can be found here.
Our grant process carefully evaluates research proposals through a Scientific Advisory Committee composed of outstanding global researchers in the WM community. All research proposals and existing IWMF grants are reviewed and administered through a volunteer Research Committee and ultimately subject to IWMF Board approval. Researchers who receive grants must submit periodic reports, including a layman’s summary, reflecting progress and developments in their funded research projects to the Research Committee. Interim and final results of research projects are periodically communicated to our membership in the IWMF Torch newsletter.
In addition to funding grants, the IWMF helps to support medical workshops and conferences, including the biennial International Workshops on Waldenstrom’s Macroglobulinemia, administered for several years by the Bing Center for Waldenstrom’s Macroglobulinemia at Dana-Farber Cancer Institute. These Workshops have produced important insights into understanding the disease and have resulted in Consensus Panel guidelines that physicians can use in their clinical practice for the care of WM patients. The IWMF also helps fund attendance at the International Workshops for up-and-coming researchers through the Young Investigator Award (YIA) program.
The IWMF research strategy, including the recent IWMF-LLS Strategic Research Roadmap Initiative, our sponsorship of medical workshops and conferences, and the YIA program are discussed in Research Strategy.
Researchers who are interested in learning more about our grant process can go to Applying for a Grant application guidelines and review criteria and download a grant application.