The IWMF supports research to understand the biology of WM, with the goals of improving quality of life for WM patients, discovering new treatments and ultimately finding a cure. The IWMF receives very little outside funding for this rare disease, and we depend greatly upon contributions from our membership and other interested individuals to support research.
IWMF funding for research has helped to provide insight into understanding the basic biology and genetics of WM. This research in turn has played a significant role in the development of treatments and treatment guidelines in current use, as well as potential new drugs still in the pipeline. You can find information about treatments here and fact sheets about several drugs currently being used here. Additional discussion about recent research discoveries and their impact on new drug development can be found here.
Clinical trials are also an essential part of drug development. In addition to supporting research with donations, patients may want to consider participating in clinical trials where appropriate. More information about clinical trials can be found here.
The Research section of the website describes the IWMF research strategy and the ways in which this strategy is implemented. It discusses our grants process, which carefully evaluates research proposals through a Scientific Advisory Committee composed of outstanding researchers in the WM community. All research proposals and existing IWMF grants are reviewed and administered through a volunteer Research Committee and ultimately subject to IWMF Board approval. Researchers who receive grants must submit periodic reports, including a layman’s summary, reflecting progress and developments in their funded research projects to the Research Committee. Interim and final results of research projects are periodically communicated in the IWMF Torch newsletter. Past and current grant recipients and summaries of their research projects are also listed in this section of the website.
For researchers who are interested in submitting proposals, we include instructions for applying for a grant as well as a grant application.
In addition to funding grants, the IWMF supports International Medical Workshops and Conferences, many of which have produced important insights into understanding the disease and have set forth guidelines for appropriate treatments. The list of past workshops can be found here. The IWMF also helps fund attendance by young and up-and-coming researchers to these workshops.
WM patients are encouraged to support research, not only through donations and participation in clinical trials, but also through periodic questionnaires and surveys conducted by medical institutions.