Our Mission:

To offer means of mutual support and encouragement for those with Waldenstrom's macroglobulinemia, their family members, and others with an interest in the disease

To provide information and educational programs that address patients' concerns

To promote and support research leading to a cure

President's Message

Welcome to the International Waldenstrom’s Macroglobulinemia Foundation (IWMF) website.  If you want to know more about Waldenstrom’s macroglobulinemia or “WM,“ you’ve come to the right place!


WM is a rare lymphoma.  With only about 1,500 diagnoses per year in the US and a similar incidence pattern in other countries, WM is considered an orphan disease. Many oncologists may have never seen a WM patient. In fact, finding good information on WM from a reliable source used to be difficult.  Our goal is to make it easier for you.

The IWMF was established to ensure that patients and caregivers have access to the best and most up-to-date information available about WM.  A patient-led and largely patient-funded organization, the IWMF is devoted to “supporting everyone affected by Waldenstrom's macroglobulinemia while advancing the search for a cure.”  This website is but one way we pursue our mission.
 To WM patients, caregivers, family members, and friends, the IWMF offers:

While WM is currently incurable, it is treatable.  To help you better manage your disease, you should learn as much as you can and be an active partner with your physicians.  A good portion of that learning process can be achieved by reading through this website.  If there's something you wish to know about, but can't find, please send an email message to

As President of the IWMF, and more importantly as a fellow WM patient, let me assure you that you are NOT alone. We’re here to help.

Carl Harrington

Join us in this important cause and click here to become a member. While there is no membership fee, we hope that you will consider making a contribution to support the work of our Foundation.  


Survivors' Corner


Read personal stories from WMers about how the disease has changed their lives.  They are not merely surviving but living well!


Cancer has made each day more precious, personal priorities have changed, friends and loved ones are more appreciated...and many are giving back to their fellow WMers with advice, support, and encouragement to live each day to the fullest. 



Click here to read their stories.


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