Becoming knowledgeable about WM, treatment options and coping mechanisms are key for your wellbeing as a patient with a very rare cancer. The IWMF offers an annual Educational Forum and makes available publications and other information to help you and your caregivers become knowledgeable about your disease. Our education strategy consists of:
- Educational Forum
- IWWM International Doctor-Patient Forum
- IWMF Educational Materials
- Quarterly Newsletter - the Torch
- Other Suggested Helpful Information
The IWMF annually sponsors, usually in the spring, an Educational Forum (Ed Forum), in different parts of the US. This Forum typically last 2-3 days and is available to all WM patients and their caregivers worldwide.
Our Ed Forum is the place to learn about our disease from WM specialists who are involved in many areas of clinical practice and research. Presentations are aimed at the layperson and address: symptoms and complications of the disease, current treatment options, new therapies, and recent research findings that may someday lead to a cure. The Ed Forum also offers breakout discussion groups on specific topics of interest to both patients and caregivers. Many of the medical professionals remain for the duration of the Forum and are available to talk with attendees on an informal basis. Each Ed Forum concludes with the popular "Ask the Doctor" question-and-answer session, moderated by Dr. Robert Kyle, of the Mayo Clinic.
Since 2000 the IWMF has co-sponsored the IWWM International Doctor-Patient Forum. This one-day educational meeting occurs bi-annually in different parts of the world following the International Workshop on WM (IWWM) for Physicians/Researchers sponsored by the Dana-Farber Cancer Institute. IWWM International Doctor-Patient Forums have been held in France, Greece, Italy, UK, US, Sweden and the Netherlands.
The International Doctor-Patient Forum provides the opportunity for patients to be updated on the most current WM research and treatment options by leading global WM physicians/researchers who attend the International Workshop on WM.
Information about the upcoming bi-annual IWWM International Doctor-Patient Forum can be found here when scheduled.
We are pleased to provide, at no cost, several publications written by medical professionals that cover many aspects of WM, including medical and blood tests, diagnosis and treatment options. These publications are directed to laypersons, and they are revised continually as our knowledge of WM advances. You can find out more about these publications and download them directly from our website here.
Several of our publications are included on CD’s and packaged as part of our Info Pak for Patients, the WMF Canada Info Pak, and the Info Pak for Medical Professionals. These can be ordered here.
Our Library contains a wealth of information from presentations, publications, and webpages that address WM biology and treatment. Also included are selected video presentations from IWMF Educational Forums, and access to information from International WM Workshops.
Our free newsletter, the Torch, is published quarterly and each issue keeps you informed about the progress being made in the fight against WM, as well as research activities, treatments, IWMF events and programs.
Dealing with a cancer diagnosis, treatment, and long-term survival issues can sometimes be overwhelming or confusing. We believe that when you're dealing with a cancer diagnosis, it's beneficial to get a variety of perspectives about how others have dealt with cancer or what advice they would share. In addition to our programs and services, the reading material and/or videos from the following organizations may help answer questions regarding cancer diagnosis, and you can search on various topics including nutrition advice, financial and employment concerns, the role of a caregiver, and more.