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Publications about WM from IWMF Partners

NCCN Guidelines for Patients with WM, 2017. A recent addition to the NCCN’s extensive series of patients’ guides for a variety of cancers, has been endorsed by the IWMF and has been adopted as a supplement to the IWMF’s library of booklets, Treatment Guides and Fact Sheets. WM patients and caregivers are certain to find this new booklet to be a relevant and informative resource that will help people living with WM talk to their physicians about the best treatment options for their disease.

IWMF Information Packets (Info Paks) For Patients and Caregivers

Information Packets (Info Pak) are intended for newly diagnosed patients and their caregivers. IWMF volunteers and WM researchers work together to develop booklets, pamphlets, and information packets that provide the newly diagnosed patient and their caregivers with up-to-date, easy to understand information regarding Waldenstrom's macroglobulinemia, how to treat it, and how to live with it. Info Paks are provided for immediate download.

What is in the Info Pak?

WM Medical Practice Guidelines & Research Articles

Disseminated cytomegalovirus disease after bendamustine: a case report and analysis of circulating B- and T-cell subsets. Andrea Cona, Daniele Tesoro, Margherita Chiamenti, Esther Merlini, Daris Ferrari, Antonio Marti4, Carla Codecà, Giuseppe Ancona, Camilla Tincati, Antonella d’Arminio Monforte and Giulia Marchetti. The authors describe a severe form of disseminated CMV disease after R-bendamustine treatment in a patient with LPL/WM with massive bone marrow infiltration. 

IWMF and Affiliate Publications

IWMF volunteers, volunteers from the IWMF Affiliates, and WM researchers  develop publications including Booklets, Treatment Guides, and Facts Sheets to provide the newly diagnosed and veteran patients, as well as their caregivers, with up-to-date information about Waldenstrom's macroglobulinemia and how to treat it.

The IWMF does not warranty the content of these publications. We are making these available to you as information, and we encourage you to discuss what may be appropriate to you with your hematologist/oncologist.

IWMF Torch

One of the best reasons to join the IWMF is to receive the IWMF Torch, our magazine which covers the latest information on WM education, research activities, and treatments.

Regular features include articles written especially for the IWMF Torch by WM specialists and researchers at major cancer institutions and a summary of the very latest in WM medical research taking place all over the world. The proceedings of important conferences are summarized to convey what's new and important straight from the experts to the members of the IWMF.

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