NCCN Guidelines for Patients with WM, 2017. A recent addition to the NCCN’s extensive series of patients’ guides for a variety of cancers, has been endorsed by the IWMF and has been adopted as a supplement to the IWMF’s library of booklets, Treatment Guides and Fact Sheets. WM patients and caregivers are certain to find this new booklet to be a relevant and informative resource that will help people living with WM talk to their physicians about the best treatment options for their disease.
Information Packets (Info Pak) are intended for newly diagnosed patients and their caregivers. IWMF volunteers and WM researchers work together to develop booklets, pamphlets, and information packets that provide the newly diagnosed patient and their caregivers with up-to-date, easy to understand information regarding Waldenstrom's macroglobulinemia, how to treat it, and how to live with it. Info Paks are provided for immediate download.
What is in the Info Pak?
Prevalence and survival of smouldering Waldenstrom macroglobulinaemia in the United States. Pophali PA, Bartley A, Kapoor P, et al. Br J Haematol 2019; 184:1014. Using the data on WM from the 2004-2012 US National Cancer Database (NCDB) the researchers determined that approximately one in three or 28% of WM cases are smoldering at diagnosis.
Videos featured in our Media Library include presentations from past Educational Forums, the IWWM International Doctor-Patient Forums presentations, presentations about WM from other events such as Support Group meetings, and short interviews with researchers, patients, and caregivers that discuss the value of IWMF Member Services a
IWMF volunteers, volunteers from the IWMF Affiliates, and WM researchers develop publications including Booklets, Treatment Guides, and Facts Sheets to provide the newly diagnosed and veteran patients, as well as their caregivers, with up-to-date information about Waldenstrom's macroglobulinemia and how to treat it.
The IWMF does not warranty the content of these publications. We are making these available to you as information, and we encourage you to discuss what may be appropriate to you with your hematologist/oncologist.
The IWMF offers a wide range of support and activities designed to increase the knowledge and skills of medical professionals and to maximize care for WM patients.
One of the best reasons to join the IWMF is to receive the IWMF Torch, our magazine which covers the latest information on WM education, research activities, and treatments.
Regular features include articles written especially for the IWMF Torch by WM specialists and researchers at major cancer institutions and a summary of the very latest in WM medical research taking place all over the world. The proceedings of important conferences are summarized to convey what's new and important straight from the experts to the members of the IWMF.