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How You Can Help

Participate in Patient Registries

Participate in Patient Registries

Patient registries provide researchers with the opportunity to analyze the data that is generated and collected over a patient’s lifetime.  The true analytical value of such registries can only be achieved when large numbers of participants provide access to their data.

The IWMF evaluates requests for participants among the WM patient/caregiver population to ensure that the registry is viable, and that proper security and privacy precautions are taken. 

Participate in Clinical Trials

Clinical trials are a final and crucial step on the path to developing better treatments for patients. They offer hope for many people and an opportunity to help researchers find better treatments for others in the future. The decision to participate in a clinical trial should be a thoughtful process in which patients carefully evaluate many aspects of the clinical trial option.

Shop

 

When you shop at the WM storefront a percentage of your purchases help fund the Member Services and Research provided by the IWMF…and at no added cost to you!
 

           

 

Advocate

In response to IWMF members who have indicated an interest in advocacy work, the IWMF established a new US advocacy plan in 2017. Through this plan, we recommend that our US members advocate and respond to US Congressional bills of particular concern to them, the WM patient community, and the IWMF. These could include, among others, bills dealing with insurance coverage of cancer therapy in all forms – intravenous, injectable, or oral; acceleration of drug approval for new therapies; and oral parity under Medicare for all forms of cancer therapy.

Join the IWMF

We appreciate that you have come to the IWMF website to learn about the disease called Waldenstrom’s macroglobulinemia (WM), and the many services provided by the IWMF. This is the page where IWMF members can renew their annual membership. And, if you are a new visitor, it is is our hope that you will now become a member of the IWMF.

Major Gifts

Named Gift Funds – For a commitment of $10,000 per year for five years, or a lump sum of $50,000 or more, you can establish a named fund at the IWMF in your own name or in the name of someone you wish to honor. This fund may support Member Services or Research or a combination of the two.

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