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About Us

Our History

We are all grateful to the founder of the IWMF, Arnold Smokler, a retired pharmacist who was diagnosed with WM in l994. Finding little information available about the disease and no organized support group, he wrote to the National Organization of Rare Diseases (NORD) and requested the names of patients listed with their organization who had Waldenstrom’s macroglobulinemia (WM). Upon receiving a list of 21 patients, Arnie mailed a questionnaire to each of them to inquire about their interest in forming a WM support group.

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