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About Us

IWMF International Affiliates

IWMF President, Carl Harrington, and Elena Malunis, IWMF Vice President of Member Services, at the 2018 Ed Forum with International Affiliate members. Pictured (from L to R) are: Carl Harrington, Rajini Seroo (India), Roger Brown (UK), Alison Brown (UK), Polo Pena (Mexico), Elena Malunis, Roger Yao (China), Betty McPhee (Canada), Saurabh Seroo (India), and Andrew Warden (Australia)

Vision and Mission

IWMF Vision Statement

  • Support everyone affected by Waldenstrom's  macroglobulinemia while advancing the search for a cure.

IWMF Mission Statement

  • To offer mutual support and encouragement to the Waldenstrom's macroglobulinemia community and others with an interest in the disease.
  • To provide information and educational programs that address patients' concerns.
  • To promote and support research leading to better treatments and ultimately, a cure.

Scientific and Research Committees

When evaluating proposals for research funding, or assessing making a call for specific types of research for basic biomedical research grants, the IWMF relies on two committees - the Scientific Advisory Committee, and the Research Committee.  The Advisory Committee is comprised of top WM researchers from around the world, and their mission is to evaluate and vet all applications for funding that come to the IWMF.  The Research Committee reviews the Advisory Committee's recommendations, evaluates the viability of the proposals and the availability of funding, and then forwards the proposal

Partners

The IWMF partners with many organizations worldwide to provide the best possible services to our members. These organizations help us better meet member needs in terms of education, research, support, and advocacy.

Below is information pertaining to currently existing IWMF partner organizations:

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Our History

We are all grateful to the founder of the IWMF, Arnold Smokler, a retired pharmacist who was diagnosed with WM in l994. Finding little information available about the disease and no organized support group, he wrote to the National Organization of Rare Diseases (NORD) and requested the names of patients listed with their organization who had Waldenstrom’s macroglobulinemia (WM). Upon receiving a list of 21 patients, Arnie mailed a questionnaire to each of them to inquire about their interest in forming a WM support group.

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