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About Us

Volunteerism for the IWMF

The IWMF is a volunteer-based and –managed not-for-profit organization. Anyone can be a volunteer – there’s no such thing as a “typical” volunteer.  Our volunteers are as diverse as the volunteer opportunities available!  In fact, the IWMF is all about a “small army of volunteers” who annually devote over 35,000 hours of their time to the organization – helping manage its programs and supporting its members.  For more details and to let the IWMF know how you can help, click here.

IWMF International Affiliates

IWMF President, Carl Harrington, and Elena Malunis, IWMF Vice President of Member Services, at the 2018 Ed Forum with International Affiliate members. Pictured (from L to R) are: Carl Harrington, Rajini Seroo (India), Roger Brown (UK), Alison Brown (UK), Polo Pena (Mexico), Elena Malunis, Roger Yao (China), Betty McPhee (Canada), Saurabh Seroo (India), and Andrew Warden (Australia)

Vision and Mission

IWMF Vision Statement

  • Support everyone affected by Waldenstrom's  macroglobulinemia while advancing the search for a cure.

IWMF Mission Statement

  • To offer mutual support and encouragement to the Waldenstrom's macroglobulinemia community and others with an interest in the disease.
  • To provide information and educational programs that address patients' concerns.
  • To promote and support research leading to better treatments and ultimately, a cure.

International Affiliates

The IWMF has its headquarters in the USA, and it has affiliate organizations in Argentina, Australia, Belgium, Canada, China, Finland,  France, Germany, India, Ireland, Italy, Mexico, the Netherlands, New Zealand, Scandinavia, Spain, Taiwan, and the UK.

These International Affiliates:

Scientific and Research Committees

When evaluating proposals for research funding, or assessing making a call for specific types of research for basic biomedical research grants, the IWMF relies on two committees - the Scientific Advisory Committee, and the Research Committee.  The Advisory Committee is comprised of top WM researchers from around the world, and their mission is to evaluate and vet all applications for funding that come to the IWMF.  The Research Committee reviews the Advisory Committee's recommendations, evaluates the viability of the proposals and the availability of funding, and then forwards the proposal

Partners

The IWMF partners with many organizations worldwide to provide the best possible services to our members. These organizations help us better meet member needs in terms of education, research, support, and advocacy.

Below is information pertaining to currently existing IWMF partner organizations:

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Our History

We are all grateful to the founder of the IWMF, Arnold Smokler, a retired pharmacist who was diagnosed with WM in l994. Finding little information available about the disease and no organized support group, he wrote to the National Organization of Rare Diseases (NORD) and requested the names of patients listed with their organization who had Waldenstrom’s macroglobulinemia (WM). Upon receiving a list of 21 patients, Arnie mailed a questionnaire to each of them to inquire about their interest in forming a WM support group.

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