Bing-Neel is an extremely rare complication of WM. For those who missed the inspirational story about Julie Davidson’s journey with Bing-Neel in the September, 2016 issue of the Torch, you can read it here in English or Spanish.
The 170 attendees at the IWWM9 Doctor-Patient Forum in Amsterdam came from Western and Eastern Europe, Central America, Australia, Canada, and the US.
The IWMF is pleased to congratulate the 11 young investigators recognized at the 9th International Workshop on WM (IWWM9) on October 5-8, 2016, in Amsterdam, The Netherlands.
The newest IWMF Affiliate, WM-Scandinavia, will provide support to WM patients and their caregivers in Denmark, Norway, and Sweden.
Davell Hays started having symptoms in the mid-1980's of what was finally diagnosed as WM in 1993. Read her Story of Hope...
Select videos from the 2016 IWMF Educational Forum (held in Providence, Rhode Island, on June 10-12, 2016) are now available. You can also find links to presentation slides and photos of the event at this location.
Ali Handal, accomplished singer-songwriter, diagnosed with WM in 2013, graced the 2016 IWMF Ed Forum with a performance of her music and reflections on her journey with WM.
In support of the IWMF-LLS Strategic Research Roadmap, the IWMF is proud to announce the award of nearly $1.7 million in new grants focused on strategic WM research areas.
The IWMF announces a new web-based tool that provides opportunities to make your next run, bike ride, swim, or other event a charitable fundraiser quickly and easily.
Roger Brown, IWMF Affiliate leader and trustee of WMUK, was recognized at the 2016 IWMF Educational Forum with the Judith May Volunteer of the Year Award.