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Ed Forum 2017

LLS WM Patient Registry Survey – Initial Results Now Available

Sep 5, 2019
In September 2018, the Leukemia and Lymphoma Society (LLS) initiated a collaboration with the IWMF and the CLL Society to invite US patients to share their medical records with LLS researchers via a secure medical records submission process.
 
Many thanks to those who participated in the survey! The IWMF community in the US responded in significant numbers that enabled the LLS researchers to perform some interesting analyses.
 
Preliminary results are now available for viewing online in a PDF Document HERE.
 
If you reside in the US or Canada and your data is available on a patient portal, please consider participating if you haven’t already done so. Joining and participating is a very simple process. For step-by-step instructions (it’s only a few steps!) on how to sign up, click HERE.
 
Once you’ve properly registered and added your data source, the LLS will take care of the rest. It’s that simple! You will never have to update your data on the Registry or do anything else again.
 
If you have questions about this process or need additional assistance, please don’t hesitate to contact the LLS at 1-844-696-7228 or PACT@LLS.ORG.
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