• Increase
  • Decrease
  • Normal

Current Size: 100%

Ed Forum 2017

IWMF Partner Offers Financial Assistance Program for Caregivers

Aug 5, 2019

The National Organization for Rare Diseases (NORD) has a financial assistance program that is currently open with funds available to help caregivers (spouse, family member, or significant other) of anyone diagnosed with a rare disorder.  Waldenstrom’s macroglobulinemia is an accepted diagnosis to qualify. 

The Respite Program provides fi­nancial assistance to enable the caregiver a break to attend a conference, event or simply have an afternoon or evening away from caregiving. Financial assistance will be granted up to $500 annually for those who qualify. Awards may be spread throughout the year or in a single use. What care may be covered? • Registered Nurse (RN) • Licensed Practical Nurse (LPN) • Certi­fied Nursing Assistant (CNA) • Home Health Aide (HHA)

Learn more about what’s covered, eligibility requirements, and the application process here

Awards are granted on a first come, first served basis to eligible individuals.  To apply contact a NORD RareCare Patient Services Representative to guide you through a brief application decision process 203-616-4328 or email caregiverrespite@rarediseases.org