In August, the IWMF welcomed Patient Worthy as another important addition to the growing number of patient support organizations motivated to make a difference! Patient Worthy focuses on collaborating with rare disease advocacy groups to help spread awareness and cover important events. The IWMF and Patient Worthy already share several partner groups in common, and we are all working together to magnify the availability of resources offered to patients.
Publishing ten new articles daily, Patient Worthy’s tagline is “Rare Patient News. Well Done.” Patient Worthy believes rare disease patients are people, not a diagnosis. Through education, awareness, and some humor, the organization helps patients, caregivers, and support persons by providing relevant and often inspirational news and stories.
Our new partner offers a page on Waldenstrom’s macroglobulinemia at its website.