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Webcasts

IWMF partner organizations created the following webcasts for people living with Waldenstrom’s macroglobulinemia (WM), their families, partners, caregivers, friends, and health care professionals. These web-based videos provide an easy way to learn about WM from the experts.
Please be aware that these webcasts are hosted on IWMF partner websites and that accessing them will require the viewer to leave this page and the IWMF website.

Link to LLS webcast
On February 13, 2018, Dr. Stephen Ansell recorded this lecture for The Leukemia and Lymphoma Society (LLS). The lecture on WM, featuring Dr. Ansell, Professor of Medicine in the Division of Hematology at the Mayo Clinic, Rochester, MN is available at the LLS website.

This one hour video on WM includes:

  • Who needs treatment at presentation
  • Treatment options for newly diagnosed and relapsed patients
  • Standard treatment options
    • Newly diagnosed patients
    • Relapsed patients

LLS Virtual Lecture Programs offer a convenient opportunity to learn about the latest disease-specific information from medical experts. Dr. Ansell’s pre-recorded presentation on WM will be available to view for approximately 12 - 18 months. You can view the slides with transcript of the lecture or view slides alone

Support for this program provided by The Leukemia & Lymphoma Society in collaboration with The International Waldenstrom’s Macroglobulinemia Foundation (IWMF).

What's New webcast
Oct 4, 2017, CancerCare
Jorge J. Castillo, MD, Bing Center for Waldenstrom's Macroglobulinemia, Dana-Farber Cancer Institute, Assistant Professor, Harvard Medical School. 
Jeffrey V. Matous, MD. Myeloma and Plasma Cell Diseases Program, Colorado Blood Cancer Institute. 
Carl Harrington. President, IWMF - The International Waldenstrom’s Macroglobulinemia Foundation
Sarah Kelly, MSW, Older Adult Program Coordinator, CancerCare

Topics Covered

  • Overview of Waldenstrom’s Macroglobulinemia
  • Symptoms & Signs
  • Front Line Treatment for WM
  • Treatment for Relapsed/Refractory WM
  • Standard of Care & New Treatment Approaches
  • Translating Genomic Findings into New Treatment Opportunities for WM
  • The Role of Clinical Trials
  • Symptom & Side Effect Management, including Reducing Complications
  • Peripheral Neuropathy
  • Communicating with Your Health Care Team about Your Quality of Life
  • Mapping the Future of WM
  • Questions for Our Panel of Experts

Over 1,000 WM’ers from around the world tuned into the session to hear Drs. Castillo and Matous discuss various aspects of WM treatment and symptoms, and respond to their questions. Countries with listeners outside the US include Australia, Belgium, Brazil, Canada, Chile, India, Italy, Finland, Mexico, Netherlands, Norway, Portugal, Thailand, Sweden, United Kingdom and Venezuela. Here’s your chance to enjoy this very informative session.

The IWMF appreciates the efforts of Dr. Jorge Castillo, Dr. Jeffrey Matous, Dr. Carolyn Messner and the CancerCare team for their time and effort to make this program possible.

Advances in Treatment webcast
January 19, 2017, CancerCare
Jorge J. Castillo, MD, Bing Center for Waldenstrom's Macroglobulinemia, Dana-Farber Cancer Institute, Assistant Professor, Harvard Medical School.
Stephen M. Ansell, MD, PhD ,Professor of Medicine, Mayo Clinic College of Medicine, Consultant, Division of Hematology, Department of Internal Medicine, Mayo Clinic
Carl Harrington. President, IWMF - The International Waldenstrom’s Macroglobulinemia Foundation
Sarah Kelly, MSW, Older Adult Program Coordinator, CancerCare

Topics Covered

  • Overview of Waldenstrom’s Macroglobulinemia
  • Symptoms & Signs
  • Front Line Treatment for WM
  • Treatment for Relapsed/Refractory WM
  • Standard of Care & New Treatment Approaches
  • Translating Genomic Findings into New Treatment Opportunities
  • The Role of Clinical Trials
  • Symptom & Side Effect Management, including Reducing Complications
  • Peripheral Neuropathy
  • Communicating with Your Health Care Team about Follow-Up Care & Quality of Life
  • Questions for Our Panel of Experts

Over 800 WM’ers from around the world tuned into the session, where Dr. Ansell and Dr. Castillo discussed various aspects of WM treatment and symptoms, and responded to listeners’ questions. Here’s your chance to listen to a recording of this very informative session.

The IWMF appreciates the efforts of the folks at CancerCare and to Dr. Stephen Ansell and Dr. Jorge Castillo for taking the time and effort to make this webcast possible.

Treatment options video
2017 Lymphoma Research Foundation (LRF) Annual North American Educational Forum on Lymphoma
Jorge J. Castillo, MD, Bing Center for Waldenstrom Macroglobulinemia, Dana-Farber Cancer Institute, Assistant Professor, Harvard Medical School.

Topics Covered

  • Overview of Waldenstrom’s Macroglobulinemia (WM)
  • Diagnostic criteria
  • Survival-patients with WM are living longer
  • Manifestations of WM
  • NCCN guidelines for initiation of therapy in WM
  • Therapy in WM
  • Genetics and Therapy
  • Novel pathways, novel targets, novel agents
  • Bendamustine, bortezomib, rituximab, ibrutinib are aa few of the treatment options
  • Ongoing trials with novel BTK inhibitors and BCL2 antagonists
  • Planned trials with CD38 and anti CXCR4 monoclonal antibodies

The IWMF appreciates the efforts of Dr. Jorge Castillo and the Lymphoma Research Foundation (LRF) for their time and effort to make this program possible.

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