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Ed Forum 2018

Presentations for Wellness

Palliative Care and Supportive Oncology for People Living with WM

Susan McInnes, MD – Cleveland Clinic, Taussig Cancer Center, 2019 Ed Forum
Helps us understand how palliative care can be an added layer of support to address symptoms, quality of life, psychosocial issues, and advance care planning and how this care is available and appropriate at all stages of WM

No video available

Link to McInnes slides

The Financial Side of Cancer (How Do I Afford My Treatment)

Heather Klusaritz PhD, MSW – University of Pennsylvania, 2019 Ed Forum
Discusses what health insurance is, how to navigate your insurance and advocate for yourself, disability options if you can’t work, and where to get more help, such as co-pay assistance.

No video available

Link to Klusaritz slides

Fact or Fiction: Nutrition and Cancer Myths

Stacy Kennedy, MPH, RD/LDN, CSO – Dana Farber Cancer Institute, 2019 Ed Forum
Helps us understand the latest research on dietary supplements during cancer treatment and interdisciplinary focused integrative therapies for oncology patients (acupuncture, reiki, massage therapy, mindfulness). Provides reliable resources for assisting patients in choosing integrative therapies.

Link to Kennedy slides

Cancer and Fatigue

Colleen Erb, MSN, CRNP, ACNP-BC, AOCNP– University of Pennsylvania, 2019 Ed Forum
Reviews cancer-related fatigue relative to quality of life issues, what causes fatigue to worsen, treatable contributing factors, other than disease or chemotherapy, other diseases that can add to fatigue, and what are the general strategies to manage fatigue

No video available

Link to Erb slides

A Patient’s Perspective on Living with WM

Peter DeNardis, IWMF Trustee & WM Warrior, 2019 Ed Forum
Provides everything you wanted to ask about living with WM upon diagnosis but were too numb to ask!

Link to DeNardis slides

Nutrition, Exercise, & Cancer

Stacy Kennedy, MPH, RD/LDN, CSO – Dana Farber Cancer Institute, 2018 Ed Forum
Teaches the power of nutrition and exercise, how to balance your plate and emphasize the rainbow, reviews symptom management, including nausea, taste, and bowel concerns, recommends super foods and foods to avoid, and reviews fitness benefits during treatment

Link to Kennedy slides

Tired of Cancer? What to Do About Cancer- Associated Fatigue

Lisa Wu, PhD – Northwestern University Feinberg School of Medicine, 2018 Ed Forum
Discusses the definition of fatigue vs. cancer-related fatigue, how often it occurs, why it happens, who experiences it, severity, when it occurs, how long it lasts, the impact on usual activities, including emotional, physical, social/familial, and cognitive impact, and interventions for patients on active treatment

No video available

Link to Wu slides

The Burning Questions about WM

Morie Gertz, MD, FACP – Mayo Clinic Rochester, 2017 Ed Forum
Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few

Link to Gertz slides

Self-Care During Your WM Journey

Toni Dubeau, RN, NP – Dana-Farber Cancer Institute, 2017 Ed Forum
Discusses the value of exercise, supplements, and diet on patient outcomes

Link to Dubeau slides

Coping with Cancer-Related Fatigue

Sharene Hollenbach, RN, OCN, Mayo Clinic Arizona, 2017 Ed Forum

No video available

Link to Hollenbach slides

IWMF Connect, Social Media & the I-Patient – Virtual Networking with Other WM’ers

Peter DeNardis, IWMF Trustee, 2017 Ed Forum

No video available

Link to DeNardis slides

Financial Insurance Issues

Jamie Ledezma, Esq., Cancer Rights Attorney, Triage Cancer, 2017 Ed Forum

No video available

Link to Ledezma slides

Self-Management: Fitness, Supplements, Diet, & Fatigue

Toni Dubeau, RN/NP – Dana Farber Cancer Institute, IWWM9 Doctor-Patient Forum, 2016

Link to Dubeau slides

Nutrition, Exercise, & Cancer

Stacy Kennedy, RD – Dana-Farber Cancer Institute, 2016 Ed Forum

No video available

Link to Kennedy slides

Cancer Survivorship

Karen Meneses, PhD, University of Alabama at Birmingham, 2016 Ed Forum
Provides stories of survivorship in the US and specifically among survivors of WM, statistics of survivorship in the US, common vs. rare cancers (such a WM), increased risk of late effects, changes in quality of life, and general tips on survivorship

No video available

Link to Meneses slides

The Garden Talk

Dr. Morie Gertz - Mayo Clinic, Rochester, 2015 Ed Forum
An informative analogy of the person as a garden and the weeds as cancer cells with suggestions to prevent growth of cancer cells.

No slides available

Integrative Oncology-Blending the Best of Both Worlds

Claudia Harsh, MD - Baylor Sammons Cancer Center, Cvetko Integrative Medicine Program, 2015 Ed Forum
Explores tools to balance emotional, mental, physical and spiritual health during and after cancer treatment. Compares Western Medicine “reactive” paradigm of healing and the Eastern Medicine “proactive” paradigm. Examines some of the evidence based and safety data for integrative therapies

No video available

Link to Harsh slides

Caring for Caregivers

Mary Turney, LCSW - Moffitt Medical Center, 2014 Ed Forum
Discusses living with hope and coping with uncertainty, who are the caregivers, WM as a chronic disease and the continuum of care, impact on the caregiver, strategies for coping

No video available

Link to Turney slides

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