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Ed Forum 2018

Presentations for Newly Diagnosed

Understanding your Blood Tests

Jeffrey Matous, MD -Colorado Blood Cancer Institute, 2019 Ed Forum
Teaches the newly diagnosed patient to understand their blood tests, as well as other tests for WM and provides a refresher course for veteran WM’ers

No video available

Link to Matous slides

The Power of Choice: Current Treatment Options for WM

Edward Stadtmauer, MD – University of Pennsylvania, 2019 Ed Forum
Reviews the diagnostic criteria, manifestations of the disease, International Staging System for prognosis for WM, diagnoses that can be confused with WM, why everyone is not treated at diagnosis, guidelines for initiation of therapy, and therapeutic landscape of WM, including the multiple treatment options for WM, plus new treatments on the horizon, and challenges in providing treatment.

Link to Stadtmauer slides

A Patient’s Perspective on Living with WM

Peter DeNardis, IWMF Trustee & WM Warrior, 2019 Ed Forum
Provides everything you wanted to ask about living with WM upon diagnosis but were too numb to ask!

Link to DeNardis slides

Basic Training for WM’ers

Jeffrey Matous, MD -Colorado Blood Cancer Institute, 2019 Ed Forum
Prepares the newly diagnosed patient to get the most out of the other videos from this Educational Forum and provides a refresher course for veteran WM’ers

Link to Matous slides

Bob Rupert's story

Living with Waldenstrom’s, Bob Rupert talks about how WM has affected him and his family, and how he is living with the disease.

No slides available

The I-Patient - Virtual Networking with Other WMers & the WhiMSICAL Database

Peter DeNardis – IWMF (assisted by Andrew Warden – Wmozzies , Australian affiliate of IWMF), 2018 Ed Forum
Presents information about IWMF Connect, Facebook, IWMF e-News, advocacy, and surveys for data bases (like WhiMSICAL)

No video available

Link to DeNardis/Warden slides

The Patient Perspective on Being Newly Diagnosed

Neil Massoth, PhD – Professor Emeritus, School of Psychology, Fairleigh Dickinson University, 2018 Ed Forum
Provides the patient’s perspective about being newly diagnosed with WM and about living for 20 years with the cancer

No slides available

The ABCs of WM

Jeffrey V, Matous MD, Colorado Blood Cancer Institute, 2018 Ed Forum
Prepares the newly diagnosed patient to get the most out of the other videos from this Educational Forum and provides a refresher course for veteran WM’ers

Link to Matous slides

Making Choices About Your Health with Your Team

Danny van Leeuwen, RN, MPH, 2018 Ed Forum
Presents advice regarding how to approach living with a serious illness and how to enhance the patient experience through quality improvement.

Link to vanLeeuwen slides

Member Resources: IWMF Connect and Website Highlights

Peter DeNardis – IWMF Trustee, 2018 Ed Forum
Provides sources of information from IWMF for patients with WM and their families, including the IWMF website, the IWMF Facebook page, the closed WM Facebook support page, IWMF Connect, e-News for those who join IWMF, emails, support groups, international affiliates, Lifeline (one on one support by subject matter), publications written specifically for patients with WM and their families, Physicians Directory (medical experts in WM from around the world), research information on WM, Stories of Hope, fundraising for the IWMF, crowdfunding, financial assistance resources

No video available

Link to DeNardis slides

The Burning Questions about WM

Morie Gertz, MD, FACP – Mayo Clinic Rochester, 2017 Ed Forum
Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few

Link to Gertz slides

The Patient Perspective on Clinical Trials

Ron Ternoway, Support Group Leader from Nova Scotia, 2017 Ed Forum
Provides the patient’s perspective about living with cancer and participating in clinical trials for WM

Link to Ternoway slides

Clinical Trial News: What New Treatments Are Coming Down the Road?

Edward Libby, MD, Seattle Cancer Care Alliance, 2017 Ed Forum
Discusses current and soon to be open clinical trials for WM

Link to Libby slides

New Insights into the Biology & Therapy of WM

Steven Treon, MD, PhD – Dana-Farber Cancer Institute, 2017 Ed Forum
Discusses manifestations of WM, side effects, genomics, treatment options, upfront treatment and relapsed/refractory treatment approaches

Link to Treon slides

The Map of Current Treatment Options for WM

Craig Reeder, MD – Mayo Clinic Arizona, 2017 Ed Forum
Reviews indications for therapy, differences in drug classes, side effects of therapy, treatment options for newly diagnosed and relapsed/refractory patients, and discusses the role of stem cell transplant

Link to Reeder slides

The Patient Perspective on Being Newly Diagnosed

Peter DeNardis – IWMF Trustee, 2017 Ed Forum
Provides the patient’s perspective about living with cancer upon diagnosis of WM

Link to DeNardis slides

The ABCs of WM

Jeffrey Matous, MD – Colorado Blood Cancer Institute, 2017 Ed Forum
Prepares the newly diagnosed to get the most out of the other videos and provides a refresher course for veteran WM’ers

Link to Matous slides

Insurance & Financial Essentials for WM

Christina Bach, LCSW – Association of Oncology Social Workers, 2016 Ed Forum

No video available

Link to Bach slides

Doctor, How Long Am I Going to Live?

Jeffrey Matous, MD- Colorado Blood Cancer Institute, 2015 Ed Forum
The prognosis varies from person to person, depending upon a variety of factors, including age at diagnosis and severity of symptoms. Fortunately recent advances in research (much of which has been funded by the IWMF) have extended this diagnosis significantly.

No slides available

Newly Diagnosed

Peter DeNardis - IWMF Trustee & Carl Harrington - IWMF President, 2015 Ed Forum

No video available

Link to DeNardis slides

The “Burning Questions” About WM

Morie Gertz, MD - Mayo Clinic, Rochester, 2014 Ed Forum
Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few.

Link to Gertz slides

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