Presentations for Newly Diagnosed

Getting to Know WM: Basics and Beyond July 22, 2020 International Waldenstrom Macroglobulinemia Foundation Jeffrey V. Matous MD - Colorado Blood Cancer Institute, and the University of Colorado. July 2020 IWMF Global Educational Webinar Series The International Waldenstrom's Macroglobulinemia Foundation invites you to join us for the first installment in our 2020 IWMF Global Educational Webinar series. Through this free interactive webinar series, you will learn from the best and brightest minds in WM research, and participate in a live Q&A session from the comfort of your own home. This webinar will benefit newly diagnosed patients and veteran WMers alike with a refresher course on the basics of WM that includes diagnosis, symptoms, and treatment guidelines. The IWMF appreciates the efforts of Dr. Jeffrey V. Matous for his time and energy to make this webinar possible. The IWMF is able to offer this incredible opportunity free of charge, thanks to the generosity of WM community members like you.		No slides available
Understanding your Blood Tests Jeffrey Matous, MD -Colorado Blood Cancer Institute, 2019 Ed Forum Teaches the newly diagnosed patient to understand their blood tests, as well as other tests for WM and provides a refresher course for veteran WM’ers	No video available	Link to Matous slides
The Power of Choice: Current Treatment Options for WM Edward Stadtmauer, MD – University of Pennsylvania, 2019 Ed Forum Reviews the diagnostic criteria, manifestations of the disease, International Staging System for prognosis for WM, diagnoses that can be confused with WM, why everyone is not treated at diagnosis, guidelines for initiation of therapy, and therapeutic landscape of WM, including the multiple treatment options for WM, plus new treatments on the horizon, and challenges in providing treatment.		Link to Stadtmauer slides
A Patient’s Perspective on Living with WM Peter DeNardis, IWMF Trustee & WM Warrior, 2019 Ed Forum Provides everything you wanted to ask about living with WM upon diagnosis but were too numb to ask!		Link to DeNardis slides
Basic Training for WM’ers Jeffrey Matous, MD -Colorado Blood Cancer Institute, 2019 Ed Forum Prepares the newly diagnosed patient to get the most out of the other videos from this Educational Forum and provides a refresher course for veteran WM’ers		Link to Matous slides
Bob Rupert's story Living with Waldenstrom’s, Bob Rupert talks about how WM has affected him and his family, and how he is living with the disease.		No slides available
The I-Patient - Virtual Networking with Other WMers & the WhiMSICAL Database Peter DeNardis – IWMF (assisted by Andrew Warden – Wmozzies , Australian affiliate of IWMF), 2018 Ed Forum Presents information about IWMF Connect, Facebook, IWMF e-News, advocacy, and surveys for data bases (like WhiMSICAL)	No video available	Link to DeNardis/Warden slides
The Patient Perspective on Being Newly Diagnosed Neil Massoth, PhD – Professor Emeritus, School of Psychology, Fairleigh Dickinson University, 2018 Ed Forum Provides the patient’s perspective about being newly diagnosed with WM and about living for 20 years with the cancer		No slides available
The ABCs of WM Jeffrey V, Matous MD, Colorado Blood Cancer Institute, 2018 Ed Forum Prepares the newly diagnosed patient to get the most out of the other videos from this Educational Forum and provides a refresher course for veteran WM’ers		Link to Matous slides
Making Choices About Your Health with Your Team Danny van Leeuwen, RN, MPH, 2018 Ed Forum Presents advice regarding how to approach living with a serious illness and how to enhance the patient experience through quality improvement.		Link to vanLeeuwen slides
Member Resources: IWMF Connect and Website Highlights Peter DeNardis – IWMF Trustee, 2018 Ed Forum Provides sources of information from IWMF for patients with WM and their families, including the IWMF website, the IWMF Facebook page, the closed WM Facebook support page, IWMF Connect, e-News for those who join IWMF, emails, support groups, international affiliates, Lifeline (one on one support by subject matter), publications written specifically for patients with WM and their families, Physicians Directory (medical experts in WM from around the world), research information on WM, Stories of Hope, fundraising for the IWMF, crowdfunding, financial assistance resources	No video available	Link to DeNardis slides
The Burning Questions about WM Morie Gertz, MD, FACP – Mayo Clinic Rochester, 2017 Ed Forum Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few		Link to Gertz slides
The Patient Perspective on Clinical Trials Ron Ternoway, Support Group Leader from Nova Scotia, 2017 Ed Forum Provides the patient’s perspective about living with cancer and participating in clinical trials for WM		Link to Ternoway slides
Clinical Trial News: What New Treatments Are Coming Down the Road? Edward Libby, MD, Seattle Cancer Care Alliance, 2017 Ed Forum Discusses current and soon to be open clinical trials for WM		Link to Libby slides
New Insights into the Biology & Therapy of WM Steven Treon, MD, PhD – Dana-Farber Cancer Institute, 2017 Ed Forum Discusses manifestations of WM, side effects, genomics, treatment options, upfront treatment and relapsed/refractory treatment approaches		Link to Treon slides
The Map of Current Treatment Options for WM Craig Reeder, MD – Mayo Clinic Arizona, 2017 Ed Forum Reviews indications for therapy, differences in drug classes, side effects of therapy, treatment options for newly diagnosed and relapsed/refractory patients, and discusses the role of stem cell transplant		Link to Reeder slides
The Patient Perspective on Being Newly Diagnosed Peter DeNardis – IWMF Trustee, 2017 Ed Forum Provides the patient’s perspective about living with cancer upon diagnosis of WM		Link to DeNardis slides
The ABCs of WM Jeffrey Matous, MD – Colorado Blood Cancer Institute, 2017 Ed Forum Prepares the newly diagnosed to get the most out of the other videos and provides a refresher course for veteran WM’ers		Link to Matous slides
Insurance & Financial Essentials for WM Christina Bach, LCSW – Association of Oncology Social Workers, 2016 Ed Forum	No video available	Link to Bach slides
Doctor, How Long Am I Going to Live? Jeffrey Matous, MD- Colorado Blood Cancer Institute, 2015 Ed Forum The prognosis varies from person to person, depending upon a variety of factors, including age at diagnosis and severity of symptoms. Fortunately recent advances in research (much of which has been funded by the IWMF) have extended this diagnosis significantly.		No slides available
Newly Diagnosed Peter DeNardis - IWMF Trustee & Carl Harrington - IWMF President, 2015 Ed Forum	No video available	Link to DeNardis slides
The “Burning Questions” About WM Morie Gertz, MD - Mayo Clinic, Rochester, 2014 Ed Forum Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few.		Link to Gertz slides