Presentations for Newly Diagnosed

Bob Rupert's story Living with Waldenstrom’s, Bob Rupert talks about how WM has affected him and his family, and how he is living with the disease.		No slides available
The I-Patient - Virtual Networking with Other WMers & the WhiMSICAL Database Peter DeNardis – IWMF (assisted by Andrew Warden – Wmozzies , Australian affiliate of IWMF), 2018 Ed Forum Presents information about IWMF Connect, Facebook, IWMF e-News, advocacy, and surveys for data bases (like WhiMSICAL)	No video available	Link to DeNardis/Warden slides
The Patient Perspective on Being Newly Diagnosed Neil Massoth, PhD – Professor Emeritus, School of Psychology, Fairleigh Dickinson University, 2018 Ed Forum Provides the patient’s perspective about being newly diagnosed with WM and about living for 20 years with the cancer		No slides available
The ABCs of WM Jeffrey V, Matous MD, Colorado Blood Cancer Institute, 2018 Ed Forum Prepares the newly diagnosed patient to get the most out of the other videos from this Educational Forum and provides a refresher course for veteran WM’ers		Link to Matous slides
Making Choices About Your Health with Your Team Danny van Leeuwen, RN, MPH, 2018 Ed Forum Presents advice regarding how to approach living with a serious illness and how to enhance the patient experience through quality improvement.		Link to vanLeeuwen slides
Member Resources: IWMF Connect and Website Highlights Peter DeNardis – IWMF Trustee, 2018 Ed Forum Provides sources of information from IWMF for patients with WM and their families, including the IWMF website, the IWMF Facebook page, the closed WM Facebook support page, IWMF Connect, e-News for those who join IWMF, emails, support groups, international affiliates, Lifeline (one on one support by subject matter), publications written specifically for patients with WM and their families, Physicians Directory (medical experts in WM from around the world), research information on WM, Stories of Hope, fundraising for the IWMF, crowdfunding, financial assistance resources	No video available	Link to DeNardis slides
The Burning Questions about WM Morie Gertz, MD, FACP – Mayo Clinic Rochester, 2017 Ed Forum Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few		Link to Gertz slides
The Patient Perspective on Clinical Trials Ron Ternoway, Support Group Leader from Nova Scotia, 2017 Ed Forum Provides the patient’s perspective about living with cancer and participating in clinical trials for WM		Link to Ternoway slides
Clinical Trial News: What New Treatments Are Coming Down the Road? Edward Libby, MD, Seattle Cancer Care Alliance, 2017 Ed Forum Discusses current and soon to be open clinical trials for WM		Link to Libby slides
New Insights into the Biology & Therapy of WM Steven Treon, MD, PhD – Dana-Farber Cancer Institute, 2017 Ed Forum Discusses manifestations of WM, side effects, genomics, treatment options, upfront treatment and relapsed/refractory treatment approaches		Link to Treon slides
The Map of Current Treatment Options for WM Craig Reeder, MD – Mayo Clinic Arizona, 2017 Ed Forum Reviews indications for therapy, differences in drug classes, side effects of therapy, treatment options for newly diagnosed and relapsed/refractory patients, and discusses the role of stem cell transplant		Link to Reeder slides
The Patient Perspective on Being Newly Diagnosed Peter DeNardis – IWMF Trustee, 2017 Ed Forum Provides the patient’s perspective about living with cancer upon diagnosis of WM		Link to DeNardis slides
The ABCs of WM Jeffrey Matous, MD – Colorado Blood Cancer Institute, 2017 Ed Forum Prepares the newly diagnosed to get the most out of the other videos and provides a refresher course for veteran WM’ers		Link to Matous slides
Insurance & Financial Essentials for WM Christina Bach, LCSW – Association of Oncology Social Workers, 2016 Ed Forum	No video available	Link to Bach slides
Doctor, How Long Am I Going to Live? Jeffrey Matous, MD- Colorado Blood Cancer Institute, 2015 Ed Forum The prognosis varies from person to person, depending upon a variety of factors, including age at diagnosis and severity of symptoms. Fortunately recent advances in research (much of which has been funded by the IWMF) have extended this diagnosis significantly.		No slides available
Newly Diagnosed Peter DeNardis - IWMF Trustee & Carl Harrington - IWMF President, 2015 Ed Forum	No video available	Link to DeNardis slides
The “Burning Questions” About WM Morie Gertz, MD - Mayo Clinic, Rochester, 2014 Ed Forum Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few.		Link to Gertz slides