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Ed Forum 2018

Peter DeNardis Presentations

The I-Patient - Virtual Networking with Other WMers & the WhiMSICAL Database

Peter DeNardis – IWMF (assisted by Andrew Warden – Wmozzies , Australian affiliate of IWMF), 2018 Ed Forum
Presents information about IWMF Connect, Facebook, IWMF e-News, advocacy, and surveys for data bases (like WhiMSICAL)

No video available

Link to DeNardis/Warden slides

Member Resources: IWMF Connect and Website Highlights

Peter DeNardis – IWMF Trustee, 2018 Ed Forum
Provides sources of information from IWMF for patients with WM and their families, including the IWMF website, the IWMF Facebook page, the closed WM Facebook support page, IWMF Connect, e-News for those who join IWMF, emails, support groups, international affiliates, Lifeline (one on one support by subject matter), publications written specifically for patients with WM and their families, Physicians Directory (medical experts in WM from around the world), research information on WM, Stories of Hope, fundraising for the IWMF, crowdfunding, financial assistance resources

No video available

Link to DeNardis slides

IWMF Connect, Social Media & the I-Patient – Virtual Networking with Other WM’ers

Peter DeNardis, IWMF Trustee, 2017 Ed Forum

No video available

Link to DeNardis slides

The Patient Perspective on Being Newly Diagnosed

Peter DeNardis – IWMF Trustee, 2017 Ed Forum
Provides the patient’s perspective about living with cancer upon diagnosis of WM

Link to DeNardis slides

Benefits of being an “Empowered Patient” and the IWMF

Peter DeNardis – Patient/IWMF Trustee, 2015 Ed Forum
Peter, a patient and IWMF Trustee, discusses the benefits to patients and caregivers of IWMF-TALK (an online discussion forum, now known as IWMF Connect) and the importance of being "empowered" patients.

No slides available

Newly Diagnosed

Peter DeNardis - IWMF Trustee & Carl Harrington - IWMF President, 2015 Ed Forum

No video available

Link to DeNardis slides

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