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Ed Forum 2018

Introductory Presentations - Overview

Understanding your Blood Tests

Jeffrey Matous, MD -Colorado Blood Cancer Institute, 2019 Ed Forum
Teaches the newly diagnosed patient to understand their blood tests, as well as other tests for WM and provides a refresher course for veteran WM’ers

No video available

Link to Matous slides

A Patient’s Perspective on Living with WM

Peter DeNardis, IWMF Trustee & WM Warrior, 2019 Ed Forum
Provides everything you wanted to ask about living with WM upon diagnosis but were too numb to ask!

Link to DeNardis slides

Basic Training for WM’ers

Jeffrey Matous, MD -Colorado Blood Cancer Institute, 2019 Ed Forum
Prepares the newly diagnosed patient to get the most out of the other videos from this Educational Forum and provides a refresher course for veteran WM’ers

Link to Matous slides

The Research Roadmap Roundup

Stephen Ansell MD, PhD - Mayo Clinic Rochester, 2018 Ed Forum
Provides the IWMF-LLS Strategic Research Roadmap and addresses the uniqueness of WM, its genomics, epigenomics, MYD88 L265P and CXCR4 mutations, and treatment options

Link to Ansell slides

The Burning Questions about WM

Morie Gertz, MD, FACP – Mayo Clinic Rochester, 2017 Ed Forum
Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few

Link to Gertz slides

Overview of the IWMF-LLS Strategic Research Roadmap – Our Track for the Future

Stephen Ansell, MD, PhD – Mayo Clinic Rochester, 2017 Ed Forum
Provides the IWMF-LLS Strategic Research Roadmap and addresses the uniqueness of WM, its genomics, epigenomics, MYD88 L265P and CXCR4 mutations, treatment options, and survival

Link to Ansell slides

The ABCs of WM

Jeffrey Matous, MD – Colorado Blood Cancer Institute, 2017 Ed Forum
Prepares the newly diagnosed to get the most out of the other videos and provides a refresher course for veteran WM’ers

Link to Matous slides

Global View of Indolent Lymphomas & WM (WM: An Exciting Upbeat Story)

Morton Coleman, MD – Weill Cornell Medical College, 2016 Ed Forum
Discusses the frequency of various lymphoma subtypes in adults, with emphasis on WM and cancer drug development and reviews the signaling pathways in WM, drugs that inhibit WM cell survival and discusses the challenges of combining drugs and limiting side effects

Link to Coleman slides

Basics of WM for the Newly Diagnosed/First Timers Session

Jeffrey Matous, MD, & Megan Andersen, NP-C - Colorado Blood Cancer Institute, 2016 Ed Forum
Prepares the newly diagnosed to get the most out of the other videos and provides a refresher course for veteran WM’ers

Link to Matous slides

Doctor, How Long Am I Going to Live?

Jeffrey Matous, MD- Colorado Blood Cancer Institute, 2015 Ed Forum
The prognosis varies from person to person, depending upon a variety of factors, including age at diagnosis and severity of symptoms. Fortunately recent advances in research (much of which has been funded by the IWMF) have extended this diagnosis significantly.

No slides available

Waldenstrom's and MGUS in Families: Your Questions and Answers

Dr. Mary Lou McMaster of NIH discusses WM biology and treatments and focuses on the topic of familial WM in her presentation to the Northern Virginia IWMF Support Group in October 2014. This video is approximately 1 hour and 30 minutes in length. Anyone wishing to view it in segments can use the following as a guide: 0 to 33 minutes - general discussion of WM, IgM, and B-cell biology; 33 minutes to 1 hour - review of the principles of WM progression and treatment; 1 hour to end - familial WM and susceptibility.

No slides available

The “Burning Questions” About WM

Morie Gertz, MD - Mayo Clinic, Rochester, 2014 Ed Forum
Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few.

Link to Gertz slides

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