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Educational Forum Multimedia

2018»

Link to 2018 IWMF Educational Forum Agenda

Member Resources: IWMF Connect and Website Highlights

Peter DeNardis – IWMF Trustee, 2018 Ed Forum
Provides sources of information from IWMF for patients with WM and their families, including the IWMF website, the IWMF Facebook page, the closed WM Facebook support page, IWMF Connect, e-News for those who join IWMF, emails, support groups, international affiliates, Lifeline (one on one support by subject matter), publications written specifically for patients with WM and their families, Physicians Directory (medical experts in WM from around the world), research information on WM, Stories of Hope, fundraising for the IWMF, crowdfunding, financial assistance resources

No video available

Link to DeNardis slides

Making Choices About Your Health with Your Team

Danny van Leeuwen, RN, MPH, 2018 Ed Forum
Presents advice regarding how to approach living with a serious illness and how to enhance the patient experience through quality improvement.

Link to vanLeeuwen slides

The ABCs of WM

Jeffrey V, Matous MD, Colorado Blood Cancer Institute, 2018 Ed Forum
Prepares the newly diagnosed patient to get the most out of the other videos from this Educational Forum and provides a refresher course for veteran WM’ers

Link to Matous slides

The Patient Perspective on Being Newly Diagnosed

Neil Massoth, PhD – Professor Emeritus, School of Psychology, Fairleigh Dickinson University, 2018 Ed Forum
Provides the patient’s perspective about being newly diagnosed with WM and about living for 20 years with the cancer

No slides available

Welcome Address

Carl Harrington – IWMF President, 2018 Ed Forum
Welcomes participants of the 2018 IWMF Educational Forum and provides a framework for the sessions

Link to Harrington slides

Current Treatment of WM

Shuo MA, MD, PhD – Northwestern University Feinberg School of Medicine, 2018 Ed Forum
Provides an overview of WM and IgM related complications, as well as an overview of treatment criteria and currently available active agents for WM

Link to Ma slides

Treatments Around the Corner for WM

Jorge Castillo, MD – Dana Farber Cancer Institute, 2018 Ed Forum
Discusses data from clinical trials for potential new treatments, such as ixazomib, dexamethasone, and rituximab as primary therapy, Venetoclax in previously treated WM, BTK inhibitor BGB-3111 in relapsed/refractory B-cell malignancies, Acalabrutinib (ACP-196), Ulocuplumab in CXCR4WHIM patients with WM, and Daratumumab in previously treated patients with WM

Link to Castillo slides

Clinical Trials & Why They Are Important

Gwen Nichols, MD – Chief Medical Officer, Leukemia & Lymphoma Society (LLS), 2018 Ed Forum
Explains how all the medicines you take today are only available because patients participated in various stages of clinical trial development, goes into depth on how a drug gets developed and goes through phase I, II, and III clinical trials, why clinical trials take so long and what is being done to speed them up, provides an overview of the LLS Clinical Trials Service Center (CTSC), and the LLS Patient Registry, a “real world” clinical trial

Link to Nichols slides

Peripheral Neuropathy

Guy Sherwood, MD – IWMF Vice President for Research, 2018 Ed Forum
Reviews the definition of peripheral neuropathy, signs and symptoms, prevalence, mechanism, anti-neural antigens of IgM, diagnosis, nerve conductions studies, and treatment strategies, including advice from WM’ers with PN in attendance

No video available

Link to Sherwood slides

Understanding your Blood Tests

Jeffrey V, Matous MD, Colorado Blood Cancer Institute, 2018 Ed Forum
Explains how blood tests are used in patients with WM, what results mean, and which tests are important to track the disease

No video available

Link to Matous slides

Predisposition to WM: Overview & Current Updates

Mary Lou McMaster, MD – National Institutes of Health, 2018 Ed Forum
Presents evidence that the risk for WM depends on a combination of genes, environmental exposures, and possibly lifestyle factors

Link to McMaster slides

Unusual Conditions in WM

Morie Gertz, MD, MACP - Mayo Clinic Rochester, 2018 Ed Forum
Discusses amyloidosis, MGUS neuropathy, cold agglutinin, cryoglobulinemia, large cell transformation, central nervous system in WM (Bing Neel), and MGRS (monoclonal gammopathy of renal significance)

Link to Gertz slides

Help in Choosing a Clinical Trial

Alissa Gentile, MSN, RN – Leukemia & Lymphoma Society (LLS), 2018 Ed Forum
Reviews myths about clinical trials, how to find clinical trials, how LLS can help locate clinical trials that might be right for you, and what are your rights around clinical trials

No video available

Link to Gentile slides

The I-Patient - Virtual Networking with Other WMers & the WhiMSICAL Database

Peter DeNardis – IWMF (assisted by Andrew Warden – Wmozzies , Australian affiliate of IWMF), 2018 Ed Forum
Presents information about IWMF Connect, Facebook, IWMF e-News, advocacy, and surveys for data bases (like WhiMSICAL)

No video available

Link to DeNardis/Warden slides

Tired of Cancer? What to Do About Cancer- Associated Fatigue

Lisa Wu, PhD – Northwestern University Feinberg School of Medicine, 2018 Ed Forum
Discusses the definition of fatigue vs. cancer-related fatigue, how often it occurs, why it happens, who experiences it, severity, when it occurs, how long it lasts, the impact on usual activities, including emotional, physical, social/familial, and cognitive impact, and interventions for patients on active treatment

No video available

Link to Wu slides

Nutrition, Exercise, & Cancer

Stacy Kennedy, MPH, RD/LDN, CSO – Dana Farber Cancer Institute, 2018 Ed Forum
Teaches the power of nutrition and exercise, how to balance your plate and emphasize the rainbow, reviews symptom management, including nausea, taste, and bowel concerns, recommends super foods and foods to avoid, and reviews fitness benefits during treatment

Link to Kennedy slides

WM: Genomic & Treatment Advances

Zachary Hunter, PhD, Guang Yang, PhD, Steve Treon, MD, PhD – Dana Farber Cancer Institute, 2018 Ed Forum
Three researchers discuss how MYD88 and CXCR4 mutations are common in WM with MYD88 activating BTK and HCK in WM cells, both targets of ibrutinib. Ibrutinib produces high response rates and durable responses in relapsed and refractory WM. No complete responses. Mutated CXCR4, aberrant IRAK and BCL2 signaling contribute to intrinsic resistance against ibrutinib. Multiple BTK mutations are common with acquired ibrutinib resistance and trigger ERK1/2 survival signaling. Novel strategies to overcome intrinsic and acquired resistance to ibrutinib, including targeting CXCR4, ERK, IRAK, and BCL2 signaling.

Link to Hunter/Yang/Treon slides

The Research Roadmap Roundup

Stephen Ansell MD, PhD - Mayo Clinic Rochester, 2018 Ed Forum
Provides the IWMF-LLS Strategic Research Roadmap and addresses the uniqueness of WM, its genomics, epigenomics, MYD88 L265P and CXCR4 mutations, and treatment options

Link to Ansell slides

Ask the Doctor Panel 2018

Guy Sherwood, MD, IWMF Vice President for Research, Moderator, 2018 Ed Forum
Researchers and clinicians answer, and sometimes debate, questions from the audience

No slides available

2017»

Link to 2017 IWMF Educational Forum Agenda

2017 Phoenix Support Group Leader Workshop Presentation

Marcia Klepac - IWMF Trustee, 2017 Ed Forum

No video available

Link to Klepac slides

The ABCs of WM

Jeffrey Matous, MD – Colorado Blood Cancer Institute, 2017 Ed Forum
Prepares the newly diagnosed to get the most out of the other videos and provides a refresher course for veteran WM’ers

Link to Matous slides

The Patient Perspective on Being Newly Diagnosed

Peter DeNardis – IWMF Trustee, 2017 Ed Forum
Provides the patient’s perspective about living with cancer upon diagnosis of WM

Link to DeNardis slides

The Map of Current Treatment Options for WM

Craig Reeder, MD – Mayo Clinic Arizona, 2017 Ed Forum
Reviews indications for therapy, differences in drug classes, side effects of therapy, treatment options for newly diagnosed and relapsed/refractory patients, and discusses the role of stem cell transplant

Link to Reeder slides

The Genetic Drivers of WM

Zachary Hunter, PhD – Dana-Farber Cancer Institute, 2017 Ed Forum
Reviews the genetics, epigenetics, genomics of WM (MYD88 L265P and CXCR4 mutations), and the genomic response to treatment options

Link to Hunter slides

Meet a Young Investigator

Jonas Paludo, MD – Mayo Clinic Rochester, 2017 Ed Forum
Reviews the clinical presentation and outcomes of young patients with WM

Link to Paludo slides

Financial Insurance Issues

Jamie Ledezma, Esq., Cancer Rights Attorney, Triage Cancer, 2017 Ed Forum

No video available

Link to Ledezma slides

How to Understand Your Blood Tests

Toni Dubeau, RN, NP, Dana Farber Cancer Institute, 2017 Ed Forum

No video available Link to Dubeau slides

Welcome Dinner 2017

Meghan Gutierrez Lymphoma Research Foundation, 2017 Ed Forum

No slides available

Immunotherapy – The Newest Treatment Route

Madhav Dhodapkar, MD – Yale University, 2017 Ed Forum
Reviews basic immunology, what makes cancer immunotherapy special, what are the some of the current approaches and existing challenges/emerging approaches

Link to Dhodapkar slides

New Insights into the Biology & Therapy of WM

Steven Treon, MD, PhD – Dana-Farber Cancer Institute, 2017 Ed Forum
Discusses manifestations of WM, side effects, genomics, treatment options, upfront treatment and relapsed/refractory treatment approaches

Link to Treon slides

IWMF Connect, Social Media & the I-Patient – Virtual Networking with Other WM’ers

Peter DeNardis, IWMF Trustee, 2017 Ed Forum

No video available

Link to DeNardis slides

Peripheral Neuropathy

Guy Sherwood, MD - IWMF Vice President for Research, 2017 Ed Forum

No video available

Link to Sherwood slides

Coping with Cancer-Related Fatigue

Sharene Hollenbach, RN, OCN, Mayo Clinic Arizona, 2017 Ed Forum

No video available

Link to Hollenbach slides

What is so “Special” About a Specialty Pharmacy?

Brenda Hawkes, Diplomat Pharmacy, 2017 Ed Forum

No video available

Link to Hawkes slides

Clinical Trial News: What New Treatments Are Coming Down the Road?

Edward Libby, MD, Seattle Cancer Care Alliance, 2017 Ed Forum
Discusses current and soon to be open clinical trials for WM

Link to Libby slides

The Patient Perspective on Clinical Trials

Ron Ternoway, Support Group Leader from Nova Scotia, 2017 Ed Forum
Provides the patient’s perspective about living with cancer and participating in clinical trials for WM

Link to Ternoway slides

Self-Care During Your WM Journey

Toni Dubeau, RN, NP – Dana-Farber Cancer Institute, 2017 Ed Forum
Discusses the value of exercise, supplements, and diet on patient outcomes

Link to Dubeau slides

Overview of the IWMF-LLS Strategic Research Roadmap – Our Track for the Future

Stephen Ansell, MD, PhD – Mayo Clinic Rochester, 2017 Ed Forum
Provides the IWMF-LLS Strategic Research Roadmap and addresses the uniqueness of WM, its genomics, epigenomics, MYD88 L265P and CXCR4 mutations, treatment options, and survival

Link to Ansell slides

The Burning Questions about WM

Morie Gertz, MD, FACP – Mayo Clinic Rochester, 2017 Ed Forum
Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few

Link to Gertz slides

Ask the Doctor Panel 2017

Guy Sherwood, MD, IWMF Vice President for Research, Moderator 2017 Ed Forum
Researchers and clinicians answer, and sometimes debate, questions from the audience

No slides available

2017 IWMF Educational Forum Posters

The posters were presented originally at the 9th International Workshop on Waldenstrom’s Macroglobulinemia in October 2016 in Amsterdam. They represent the work of young researchers, all of whom received Young Investigator Awards (YIAs) at the Workshop and most of whom were sponsored by the IWMF or its International Affiliates. Nearly all the Young Investigators gave us permission to reproduce their posters for the 2017 IWMF Educational Forum in Phoenix, AZ, and to place them on our website.

No video available

Link to Poster presentations

2016»

Link to 2016 IWMF Educational Forum Agenda

Basics of WM for the Newly Diagnosed/First Timers Session

Jeffrey Matous, MD, & Megan Andersen, NP-C - Colorado Blood Cancer Institute, 2016 Ed Forum
Prepares the newly diagnosed to get the most out of the other videos and provides a refresher course for veteran WM’ers

Link to Matous slides

IWMF Research Roadmap Overview & Bone Marrow Tumor Microenvironment

Stephen Ansell, MD, PhD - Mayo Clinic, Rochester, 2016 Ed Forum
Covers what is unique about WM, as well as, genomics, epigenomics, MYD88 L265P and CXCR4 mutations, survival, and treatment options

Link to Ansell slides

Frontline Treatment Options for WM

Jorge Castillo, MD - Dana-Farber Cancer Institute, 2016 Ed Forum
Reviews the manifestations of WM disease, NCCN guidelines for initiation of treatment for WM, single agent treatments, combination therapies, maintenance, and new directions, including frontier clinical trials at Dana Farber Cancer Institute

Link to Castillo slides

Treatment Options for Relapsed/Refractory WM

Jeffrey Matous, MD – Colorado Blood Cancer Institute, 2016 Ed Forum
Discusses the definition of relapse and how to recognize it, approaches treatment from a doctor’s perspective, goals of retreatment, how aggressive can and should we be with treatment, and treatment choices for relapsed/refractory WM

No video available

Link to Matous slides

IWMF President’s Address

Carl Harrington, IWMF, President, 2016 Ed Forum

No video available

Link to Harrington slides

Ali Handal Keynote Performance

Musical Entertainment at Welcome Dinner, 2016 Ed Forum

No slides available

WM and the Eye

Maureen Hanley, OD, New England College of Optometry, 2016 Ed Forum
Provides an insight into normal aging versus WM related issues, such as conjunctival pallor as simple screening for anemia, subconjunctival hemorrhages and plasmapheresis, dry eye, corneal changes with WM, cataracts, retinal changes with anemia and WM, maculopathy, even if IgM is not high, and increased risk of glaucoma

No video available

Link to Hanley slides

Cellular Immunotherapy for Lymphoid Cancers

Edward Stadtmauer, MD, University of Pennsylvania, 2016 Ed Forum
Covers the manifestations of WM, immunologic approaches to overcome self-tolerance in lymphoma, rationale for cellular immunotherapy in lymphoma, adoptive T-cell therapy, second generation of CAR for B-cell malignancies, overview of activated/engineered T-cell therapy, CD19-targeted CAR T-cells for B-cell malignancies, phase I trial for CLL, results with diffuse large B-cell lymphoma, follicular lymphoma and adverse events, pilot study of CART19 in multiple myeloma, CART-BCMA cells for multiple myeloma, and potential strategies to improve CART therapy in lymphoma

Link to Stadtmauer slides

Cancer Survivorship

Karen Meneses, PhD, University of Alabama at Birmingham, 2016 Ed Forum
Provides stories of survivorship in the US and specifically among survivors of WM, statistics of survivorship in the US, common vs. rare cancers (such a WM), increased risk of late effects, changes in quality of life, and general tips on survivorship

No video available

Link to Meneses slides

Clinical Trials

Megan Andersen, NP-C -Colorado Blood Cancer Institute, 2016 Ed Forum

No video available

Link to Andersen slides

Insurance & Financial Essentials for WM

Christina Bach, LCSW – Association of Oncology Social Workers, 2016 Ed Forum

No video available

Link to Bach slides

Nutrition, Exercise, & Cancer

Stacy Kennedy, RD – Dana-Farber Cancer Institute, 2016 Ed Forum

No video available

Link to Kennedy slides

Peripheral Neuropathy

Guy Sherwood, MD - IWMF Vice President for Research, 2016 Ed Forum

No video available

Link to Sherwood slides

MYD88, CXCR4, & the Molecular Basis of WM

Zachary Hunter, PhD – Dana Farber Cancer Institute, 2016 Ed Forum
Reviews genetics, epigenetics and the epigenome, including the genomics of WM

No video available

Link to Hunter slides

An Overview of Epigenetics (Why understanding the epigenome will change the practice of medicine)

Ari Melnick, MD – Weill Cornell Medical College, 2016 Ed Forum
Provides an understanding of genomics and explains the genome/computer operating system vs. epigenome/computer programs metaphor. Reviews epigenetics as a blueprint for cancer cells and how epigenetics and understanding the mechanism yields therapies for turning DLBCL cells into plasma cells

No video available

Link to Melnick slides

Translating Genomic Findings into New Treatment Opportunities for WM

Steven Treon, MD, PhD – Dana-Farber Cancer Institute, 2016 Ed Forum
Reviews WM-centric toxicities with commonly used therapies and discusses new directions in WM based on the MYD88 L265P somatic mutation in WM

Link to Treon slides

An Exciting Time in Waldenstrom's!

Stephen M. Ansell MD, PhD – Mayo Clinic, Rochester, 2016 Ed Forum
Explains the IWMF-LLS Strategic Research Roadmap and its importance to the WM community

No slides available

Global View of Indolent Lymphomas & WM (WM: An Exciting Upbeat Story)

Morton Coleman, MD – Weill Cornell Medical College, 2016 Ed Forum
Discusses the frequency of various lymphoma subtypes in adults, with emphasis on WM and cancer drug development and reviews the signaling pathways in WM, drugs that inhibit WM cell survival and discusses the challenges of combining drugs and limiting side effects

Link to Coleman slides

Ask the Doctor Panel 2016

Robert Kyle, MD – Mayo Clinic Rochester, Moderator, 2016 Ed Forum
Noted researchers and clinicians answer and sometimes debate questions from the audience

No slides available

2015»

Link to 2015 IWMF Educational Forum Agenda

IWMF Welcome Address

Carl Harrington, IWMF President, 2015 Ed Forum

No video available

Link to Harrington slides

Maps of Where IWMF Members Are

Carl Harrington - IWMF President, 2015 Ed Forum

No video available

Link to Harrington slides

I’ve Been Diagnosed with WM – What Happens Now?

Joseph Mikhael, MD, MEd - Mayo Clinic, Arizona, 2015 Ed Forum
Reviews the basics of Waldenstrom’s Macroglobulinemia and how it is distinguished from myeloma and lymphoma.
Discusses the importance of an accurate diagnosis in WM.
Highlights the critical features to establish the need to treat WM.
Outlines the overall approach to therapy of WM.
Empowers you for the rest of this conference and your disease “career.”

Link to Mikhael slides

Integrative Oncology-Blending the Best of Both Worlds

Claudia Harsh, MD - Baylor Sammons Cancer Center, Cvetko Integrative Medicine Program, 2015 Ed Forum
Explores tools to balance emotional, mental, physical and spiritual health during and after cancer treatment. Compares Western Medicine “reactive” paradigm of healing and the Eastern Medicine “proactive” paradigm. Examines some of the evidence based and safety data for integrative therapies

No video available

Link to Harsh slides

IWMF Member Services – History & Progress

Carl Harrington - IWMF President, 2015 Ed Forum

No video available

Link to Harrington slides

IWMF Research – History & Progress

Guy Sherwood, MD - IWMF Vice President for Research, 2015 Ed Forum

No video available

Link to Sherwood slides

I Need Treatment – First-Line Treatments & Side Effects

Larry Anderson, MD, PhD - University of Texas Southwestern Medical Center, 2015 Ed Forum
Covers diagnosis of WM (aka LPL) and treatment options

Link to Anderson slides

My WM is Back–Relapsed/Refractory Treatments

Sheeba Thomas, MD - MD Anderson Cancer Center, 2015 Ed Forum
Explores diagnosis, recommendations for treating relapsed WM, clinical trials, and future therapies

Link to Thomas slides

IWMF President’s Address

Carl Harrington - IWMF President, 2015 Ed Forum

No video available

Link to Harrington slides

IWMF Keynote Address

Kenneth Anderson, MD - Dana Farber Cancer Institute, 2015 Ed Forum
Covers treatments then (1995) and now (2015), survival

No video available

Link to Anderson slides

Judith May Story

Robert Kyle, MD - Mayo Clinic, Rochester, 2015 Ed Forum

No video available

Link to Kyle slides

The Garden Talk

Dr. Morie Gertz - Mayo Clinic, Rochester, 2015 Ed Forum
An informative analogy of the person as a garden and the weeds as cancer cells with suggestions to prevent growth of cancer cells.

No slides available

Dr. Jan Waldenstrom – our Patron Saint

Robert Kyle, MD - Mayo Clinic, Rochester, 2015 Ed Forum

No video available

Link to Kyle slides

How B-cells Work and Talk to Each Other

Stephen Ansell, MD, PhD - Mayo Clinic, Rochester, 2015 Ed Forum
Reviews how lymphocytes become plasma cells and then produce antibodies and activate the B-cell receptor pathway, the Toll-like receptor pathway, causes of increased production of IgM in WM, cytokines, chemokines, receptor/ligand interactions and cell communications

Link to Ansell slides

Harnessing Killer T-Cells

Julie Nielsen, PhD - Deeley Research Centre, British Columbia Cancer Foundation, 2015 Ed Forum
Provides an overview of the immune response to cancer, what T cells are and how they work, immune-based therapies for cancer, using T cells to target patient-specific mutations, targeting MYD88 with T cells, CD19 Car T cells, and mutations in WM

No video available

Link to Nielsen slides

Familial WM

Mary L. McMaster, MD - National Institutes of Health, 2015 Ed Forum
Explores why WM sometimes clusters in families, is WM in families different from non-familial WM, why some people are susceptible to WM, factors that increase risk for WM, genetics, and environmental lifestyle

Etudes Sur les Familles de Malades Waldenstrom (en français)

No video available

Link to McMaster slides

Genomic Landscape of WM (Making Sense of MYD88, CXCR4 and the Genetics of WM

Zachary Hunter, PhD - Dana Farber Cancer Institute, 2015 Ed Forum
Discusses genetics, family inheritance, the genome, transcriptome, proteome, epigenome, and the genome of WM

No video available

Link to Hunter slides

Targeted Therapies for WM

Steven Treon, MD, PhD - Dana Farber Cancer Institute, 2015 Ed Forum
Explains the WM-centric toxicities with commonly used therapies and new treatment directions in WM, including MYD88 L265P mutation and the MYD88 L265P signal pathway, Ibrutinib studies and its effect on side effects and survival, WHIM-like CXCR4 C-tail mutations in WM, unmutated MYD88 disease in WM, Idelalisib, clinical trial of ABT-199 (BCL2 inhibitor) in relapsed/refractory WM, resistance to Ibrutinib, and Ixazomib clinical trial

Link to Treon slides

Newly Diagnosed

Peter DeNardis - IWMF Trustee & Carl Harrington - IWMF President, 2015 Ed Forum

No video available

Link to DeNardis slides

The Strategic Research Roadmap for WM

Lee Greenberger, PhD - The Leukemia and Lymphoma Society, 2015 Ed Forum
Covers who is LLS, what are their interests in WM, what have they funded, what is the road ahead, and how will we fund the future

No video available

Link to Greenberger slides

Ask the Doctor Panel 2015

Robert Kyle, MD – Mayo Clinic, Rochester, Moderator, 2015 Ed Forum
Noted researchers and clinicians answer and sometimes debate questions from the audience

No slides available

Benefits of being an “Empowered Patient” and the IWMF

Peter DeNardis – Patient/IWMF Trustee, 2015 Ed Forum
Peter, a patient and IWMF Trustee, discusses the benefits to patients and caregivers of IWMF-TALK (an online discussion forum, now known as IWMF Connect) and the importance of being "empowered" patients.

No slides available

Benefits of IWMF Services for Caregivers

Gilbert Scherer, Caregiver, Ed Forum 2015
As a caregiver, Gilbert discusses how he and his wife dealt with a WM diagnosis and were educated by engaging with the IWMF, attending an IWMF Ed Forum, and volunteering for the Foundation. His words speak volumes about the benefit of joining the IWMF and taking advantage of the services that it offers, as well as the importance of funding the IWMF to drive the basic research that is so vital for better treatments, and ultimately, a cure.

No slides available

Benefits of IWMF Services for Newly Diagnosed Patients with WM

Lu Kleppinger – Patient/IWMF Support Group Leader, 2015 Ed Forum
A WM patient, Lu covers her experience at diagnosis, discusses tips for what a first time patient should do, and encourages folks to take advantage of the IWMF's services and to become active in the Foundation.

No slides available

Doctor, How Long Am I Going to Live?

Jeffrey Matous, MD- Colorado Blood Cancer Institute, 2015 Ed Forum
The prognosis varies from person to person, depending upon a variety of factors, including age at diagnosis and severity of symptoms. Fortunately recent advances in research (much of which has been funded by the IWMF) have extended this diagnosis significantly.

No slides available

How Far We Have Come with IWMF Research and the Treatment of WM

Robert Kyle, MD – Mayo Clinic, Rochester, 2015 Ed Forum
Dr. Kyle speaks on a range of topics: his background and early days treating WM patients; the many benefits provided by the IWMF, especially to the newly diagnosed; the critical role of IWMF-funded research; the future of research; and the promising days ahead for better management of WM.

No slides available

Impact of IWMF Funding for Basic Scientific Research on WM at Dana Farber Cancer Institute

Zachary Hunter, PhD – Dana Farber Cancer Institute, Boston, 2015 Ed Forum
Dr. Hunter speaks about his research into WM with Dr. Treon at DFCI. He specifically mentions the importance of basic scientific research and the IWMF's role in that research.  He also reveals that there is familial WM in his family, along with close family friends.

No slides available

Impact of IWMF Funding for Research on Mayo Clinic Patients with WM

Morie Gertz, MD, MACP – Mayo Clinic, Rochester, 2015 Ed Forum
Dr. Gertz talks about the Mayo Clinic approach to treating WM patients and the impact that IWMF funding for research has had on the search for improved treatments and a cure for WM

No slides available

IWMF Funding of Landmark Discoveries in WM and how Continued Funding is Critical for Future Management of the Disease

Steven P. Treon, MD, PhD – Dana Farber Cancer Institute, Boston, 2015 Ed Forum
Dr. Treon discusses his interest in WM and WM research, focusing on the whole genome sequencing research supported by the IWMF that helped make the critical discoveries of the MYD88 and CXCR4 mutations. He also mentions that continued funding of WM research is critical to future success in managing the disease.

No slides available

IWMF Research on WM and Immune-based T-cells

Julie Nielsen, PhD - BC Cancer Agency, Canada, 2015 Ed Forum
Dr. Nielsen talks about what led her to focus on WM and on immune-based T-cell research. She also provides insight into the promise that these new research areas hold for developing new and better treatments for WM patients.

No slides available

IWMF Support Groups and their Impact on the Newly Diagnosed Patient

Lisa Wise – Patient/IWMF Support Leader, 2015 Ed Forum
As a WM patient, Lisa talks about her diagnosis and the benefits provided by the IWMF. She also discusses her initial reluctance to attend a Support Group and her subsequent realization that the Group has been of great support to her personally.

No slides available

Research and IWMF

Stephen M. Ansell MD, PhD – Mayo Clinic, Rochester, 2015 Ed Forum
Dr. Ansell talks about his interest in WM, the funding provided by the IWMF for his research, and the team effort he is involved in with WM patients and the IWMF.  He also discusses the current exciting times for WM in terms of research, with opportunities for improved treatments and the possibility of a cure in the near future.

No slides available

Research on WM at the National Cancer Institute

Mary McMaster, MD – National Cancer Institute, Bethesda, Ed Forum 2015
Dr. McMaster explains how she came to be involved with WM and discusses her interest and research into the familial aspects of WM at the US National Cancer Institute.

No slides available

The Leukemia & Lymphoma Society (LLS) and the IWMF, Partners in the Strategic Research Roadmap Towards a Cure for WM

Lee Greenberger, PhD – Chief Scientific Officer, The Leukemia & Lymphoma Society, 2015 Ed Forum
Dr. Greenberger discusses the LLS's plans to support the IWMF with new research that could lead to a better understanding of the disease and in turn could support the development of novel treatments and a cure. He also provides a quick summary of the importance of immune system modulation/immunotherapy research.

No slides available

2014»

Link to 2014 IWMF Educational Forum Agenda

Hematology 101

Richard Baz, MD - Moffitt Cancer Center, 2014 Ed Forum
Reviews general hematology and immunology, WM, and provides understanding of your laboratory work and response assessment

Link to Baz slides

Caring for Caregivers

Mary Turney, LCSW - Moffitt Medical Center, 2014 Ed Forum
Discusses living with hope and coping with uncertainty, who are the caregivers, WM as a chronic disease and the continuum of care, impact on the caregiver, strategies for coping

No video available

Link to Turney slides

Traditional Therapies for WM

Christine Chen, MD - Princess Margaret Cancer Center, Toronto, 2014 Ed Forum
Reviews the treatment options for patients with WM and side effects of the therapies

No video available

Link to Chen slides

Novel Treatments for WM

Peter Martin, MD - Weill Cornell Medical College, 2014 Ed Forum
Discusses the consensus recommendations of the 4th International WM meeting and then presents how drug development proceeds in WM with a discussion of new therapies and clinical trials

No video available

Link to Martin slides

Progress in Indolent Lymphoma: Is Chemotherapy Dead?

Bruce Cheson, MD - Georgetown University, 2014 Ed Forum
Reviews chemotherapy and where are we going in treatment strategies and clinical trials, problems in new drug development, and issues for the future

Link to Cheson slides

Managing the Side Effects of Treatment

Jeffrey Matous, MD - Colorado Blood Cancer Institute, 2014 Ed Forum
Raises questions about disease vs. treatment side effects, WM symptoms vs, manifestations, other problems that arise with the diagnosis of WM, treatments for WM, and common side effects

Link to Matous slides

Indications for Treatment (IgM MGUS & Smoldering WM)

Robert Kyle, MD - Mayo Clinic, Rochester, 2014 Ed Forum
Provides insight into IgM MGUS and smoldering WM, expected progression rates, risk factors for progression, no treatment unless symptomatic or when significant anemia develops

No video available

Link to Kyle slides

The Clinical Trials Process (an educated patient’s guide)

Gwen Nichols, MD – Hoffmann-LaRoche Translational and Clinical Research Center, 2014 Ed Forum
Raises questions about clinical trials, do they work and how to become an educated consumer, and covers the drug development process, clinical trials and the 5 “Ws,” clinical trial lingo, why drug development takes so long, questions to ask about trial participation (questions to ask your MD and yourself)

No video available

Link to Nichols slides

Pulling the Plug on Cancer Cell Communication

Stephen Ansell, MD, PhD – Mayo Clinic, Rochester, 2014 Ed Forum
Covers why WM cells need to communicate and how they communicate, cytokine networks, B-cell receptor pathway, Toll-like receptor pathway, what goes wrong in WM, what causes the increased production of IgM in WM, B-lymphocyte stimulator (BLyS) increase in WM, and why we need to stop the communication

No video available

Link to Ansell slides

New Developments in WM Research (updates of research in WM)

Irene Ghobrial, MD – Dana Farber Cancer Institute, 2014 Ed Forum
Discusses tissue bank research studies, the development of an integrated tissue bank that is linked to clinical characteristics from patients with different stages of WM, and early results from that study
Covers CXCR4 in MM and WM and C10113G/CXCR4 variant in WM and treatment options

No video available

Link to Ghobrial slides

Advances in the Management of WM Revealed by Whole Genome Sequencing (Genomic Based Treatment Advances in WM)

Steven Treon, MD, PhD - Dana Farber Cancer Institute, 2014 Ed Forum
Discusses the NCCN options for treatment of WM, WM-centric toxicities with commonly used therapies, MYD88 L265P in WM /IgM MGUS, MYD88 L265P Signal Pathway and Ibrutinib (inhibitor of BTK), and Idelalisib (inhibitor of P13K-delta)

Link to Treon slides

Peripheral Neuropathy

Guy Sherwood, MD – IWMF Vice President for Research, 2014 Ed Forum 
Reviews the definition, classification, prevalence, signs and symptoms, mechanism of PN, discusses the anti-neural antigens of IgM, as well as the treatment of PN with questions that should be asked by patients for their doctor

No video available

Link to Sherwood slides

The “Burning Questions” About WM

Morie Gertz, MD - Mayo Clinic, Rochester, 2014 Ed Forum
Raises questions and answers about WM, such as, “Are my kids going to get this? How long will I live? What can I do to live longer?” just to name a few.

Link to Gertz slides

Ask the Doctor Panel 2014

Robert Kyle, MD – Mayo Clinic, Rochester, Moderator, 2014 Ed Forum
Noted researchers and clinicians answer and sometimes debate questions from the audience

No slides available
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