Contact

  • 6144 Clark Center Ave.Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]

IWMF & Affiliate Publications

Downloadable Publications

Discover the most recent information about Waldenstrom’s macroglobulinemia with IWMF Booklets, Treatment Guides, and Fact Sheets written by the IWMF, its affiliates, medical advisors, and IWMF-funded researchers. These publications are downloadable and most are available in several languages.

Booklets

All languages

All languages
English Traditional Chinese 繁體中文 Simplified Chinese 简体中文 Espanol Francais Italiano Simplified Chinese 简体中文 French Deutsch Norwegian Polskie Portuguesa Finnish Suomi Essential Information: A Patient's Guide Chinese - PRC Chinese - Taiwan Finnish German Italian Polish Portuguese Spanish Swedish Chinese (PRC) Chinese (Taiwan)
Basic Immunology

By Guy Sherwood, M.D., 2014
Revised Linda Nelson, 2018

Basic Immunology Booklet Cover

A comprehensive review of immunology and genetics as it relates to WM.

A Basic Guide to Understanding Your Bone Marrow and Waldenstrom’s Macroglobulinemia

Written & compiled by Debra Entin, Glenn Cantor, Linda Nelson, Tom Hoffmann, & Sue Herms, 2022.

A Basic Guide to Understanding Your Bone Marrow and Waldenstrom’s Macroglobulinemia

This booklet is designed to help patients with WM understand the basic functions of the bone marrow and how those are affected by our disease, including the bone marrow biopsy procedure and medical tests.

Essential Information: A Patient's Guide

Written by Stephen M. Ansell, M.D., Ph.D, Carl Harrington, Steven Treon, M.D., Ph.D., 2023 

Essential Information: A Patient's Guide Thumb

Essential Information: A Patient’s Guide on Waldenstrom’s Macroglobulinemia.

Essential Information: A Physician's Guide

Written by Shayna Sarosiek, M.D., and Jorge J. Castillo, M.D.,  2023 

IWMF Essential Information: A Physician's Guide Booklet Cover

Essential Information: A Physician’s Guide on Waldenstrom’s Macroglobulinemia.

Essential Information: A Nurse's Guide

Written by Shayna Sarosiek, M.D., Catherine A. Flynn, NP., and Jorge J. Castillo, M.D.,  2023 

IWMF Essential Information: A Nurse's Guide Booklet Cover

Essential Information: A Nurse’s Guide on Waldenstrom’s Macroglobulinemia.

Frequently Asked Questions

By Peter DeNardis, Marcia Klepac, Elena Malunis, and Linda Nelson, 2017.
Revised Linda Nelson, 2019

This booklet answers frequently asked questions about WM in a very readable format for those who may not have a strong background in biology.

Glossary: Useful Words to Know When You Have WM

Written & compiled by Guy Sherwood, M.D., Bret Blakeslee, Sue Herms, & Peter DeNardis, 2015.
Revised Linda Nelson, Glenn Cantor, & Sue Herms, 2023.

Glossary: Useful Words to Know When You Have WM Thumb

This glossary is designed to help patients with WM learn and understand pertinent medical terms that relate to the disease.

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Medical Tests

By Guy Sherwood, M.D., 2007
Revised by Linda Nelson and Sue Herms, 2016, 2020

A reference booklet of medical terms and tests, this revision places particular emphasis on expanding the explanation of the Complete Blood Count and on Immunoglobulins. Tests for beta-2 microglobulin and light chains have been added, as has genetics testing.

Questions and Answers

By Guy Sherwood and Sue Herms, Revised 2010, 2014.
Revised Sue Herms and Linda Nelson, 2017.
Revised Glenn Cantor, Sue Herms, and Linda Nelson 2022.

Designed to provide detailed answers to questions about Waldenstrom’s macroglobulinemia, including a full glossary of terms.

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Clinical Practice Guide for the Treatment of WM (Australia)

By Dipti Talaulikar, M.D., Constantine Tam, M.D., et al, 2022

This booklet is a consensus established by the Australian Medical Scientific Advisory Group, which consists of a panel of haematologists across Australia, and it is provided by  the IWMF Affiliate (WMozzies) in Australia.

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Guide to WM (Germany)

By Christian Buske, M.D., and George Hess, M.D., 2014
Revised 2019

This booklet is provided by the IWMF-Affiliate Morbus Waldenstrom (MOWA) in Germany.

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Guide to WM and LPL (UK)

By Shirley D’Sa, M.D., 2014, updated 2018, updated 2020.

This booklet is provided by the IWMF Affiliate Waldenstrom’s UK (WMUK). The drugs mentioned in the booklet are noted by their generic names and by their UK-specific trade names and may/may not be available in UK/US (or elsewhere) unless in the context of a clinical trial.

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Treatment Options Guides

All languages

All languages
English Traditional Chinese 繁體中文 Simplified Chinese 简体中文 Deutsch Espanol Francais Italiano

These Treatment Options Guides review drug therapies and treatment guidelines currently used in the management of Waldenstrom’s macroglobulinemia. They are designed to provide patients with some of the necessary information to allow them to participate with their physicians in determining the best course of treatment for their disease.

Alkylating Agents and Nucleoside Analogs

By Suzanne Herms, 2016
Revised 2021

This Guide discusses alkylating agents, such as chlorambucil (Leukeran), cyclophosphamide (Cytoxan), melphalan (Alkeran) and bendamustine (Bendeka, Treanda, Levact), as well as nucleoside analogs, such as fludarabine (Fludara) and cladribine (2CdA or Leustatin).

Monoclonal Antibodies

By Suzanne Herms, 2016
Revised 2021

This Guide discusses monoclonal antibodies, such as rituximab (Rituxan or Mabthera), ofatumumab (Arzerra), and alemtuzumab (Campath).

Proteasome Inhibitors

By Suzanne Herms, 2016
Revised 2021

This Guide includes proteasome inhibitors, such as bortezomib (Velcade), carfilzomib (Kyprolis), and ixazomib (Ninlaro).

Targeted Therapies/Pathway Inhibitors

By Suzanne Herms, 2016
Revised 2021

This Guide discusses targeted therapies/pathway inhibitors to B-cell signaling, such as ibrutinib (Imbruvica) and everolimus (RAD001 or Afinitor).

Fact Sheets

All languages

All languages
English Traditional Chinese 繁體中文 Simplified Chinese 简体中文 Deutsch Espanol Francais Italiano Norsk Polskie Portuguesa Finnish Suomi Swedish

These are short summaries that include information about WM, common treatments, and other associated topics.

The Bone Marrow and Waldenstrom’s Macroglobulinemia (Beyond Basics) Fact Sheet
Decoding Drug Names
Download
Human Intravenous Immunoglobulin (IVIG) Replacement Therapy
Laboratory Diagnosis and Monitoring of Waldenstrom Macroglobulinemia Fact Sheet
Download
Patient Essential Information Infographic
Download
Specialty Pharmacy
Download