Clinical trials are a final and crucial step on the path to developing better treatments for patients…and we now have the opportunity to participate in more clinical trials than ever specifically for WM.
Historically, 85% of all clinical trials face delays and 30% never get off the ground because of lack of volunteers. The good news is that now you have the power to propel clinical research towards breakthroughs WM patients can feel in their everyday lives.
Clinical trials offer hope for many people and an opportunity to help researchers find better treatments for others in the future.
Find out more about clinical trials here.
The decision to participate in a clinical trial should be a thoughtful process in which patients carefully evaluate many aspects of the clinical trial option. Some items that you may want to include in your personal considerations can be found here.
The IWMF Clinical Trial Policy can be found here.
Clinical trials for WM can be found at the National Institutes of Health clinical trials website, www.clinicaltrials.gov. If you want to do a general search of such clinical trials, begin typing Waldenstrom in the "Condition/Disease" Search box, and you should see a dropdown menu of conditions to choose from that include Waldenstrom's. You can click on the box "Find a study to participate in" if you want to see only those trials that are currently recruiting participants, or you can click on the box "Search all studies" to see all clinical trials, including those that have not yet begun recruiting or that are now closed. You can narrow your search by using the "Country" Search box; if you choose the United States, an additional Search box will open to allow you to search by State. You can view trials of particular drugs or view an individual trial by its assigned NCT number if you use the "Other Terms" Search box.