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Why Join the IWMF?

Do you want to make a difference?  Join us at the IWMF (International Waldenstrom’s Macroglobulinemia Foundation) and lead us to a future with better tomorrows for people worldwide who are affected by WM (Waldenstrom’s macroglobulinemia.)

Founded in 1994, the IWMF has been patient-led and patient-funded.  But, we’ve grown so much that we now need full-time professional leadership. The IWMF is a close-knit community of 21,000 WMers in over 80 countries.  Headquartered in Sarasota, Florida, the IWMF has strong financials and a top 4-star rating from Charity Navigator. We offer strong educational and emotional support to families affected by WM, a rare, incurable, but treatable non-Hodgkin’s lymphoma, while we lead the search for a cure. See our website at www.iwmf.com to learn more about WM and the IWMF, and see the Chief Executive Officer job description below. Compensation is competitive and will be based upon experience.

If you really want to make a difference and help build better tomorrows for thousands of WMers, send your resume and cover letter to Carl Harrington, Chairman of the IWMF Board of Trustees, at charrington@IWMF.com.

Join us and give new meaning to the word, “job”!



Position:                 Chief Executive Officer

Team:                     Executive

Reports To:            IWMF Board of Trustees

Employee Status:  Exempt


The Chief Executive Officer (CEO) provides professional leadership, management, oversight, and direction to the International Waldenstrom’s Macroglobulinemia Foundation (IWMF) by assisting the Board and guiding volunteers and staff in fulfilling its mission.  The CEO is responsible for the administration of Board policies and the day to day operations of the IWMF.  Key areas of oversight include staff, working volunteers (serving in key staff roles), financial management, member services, research, strategic planning, fundraising, and marketing.  The position reports directly to the Chairman of the Board of Trustees.  The position is located in Sarasota, Florida. Moderate travel required.


  1. Board and Committee Support
    1. Work with the Board to develop goals and long-term strategic and operating plans for the IWMF
    2. Work with the Board Chair to plan for Board and Executive Committee meetings and prepare an agenda
    3. Regularly communicate with the Board between Board meetings
    4. Work with staff to further the work of all Board Committees
    5. Attend all Board and Executive Committee meetings in a non-voting capacity
    6. Maintain records of all Board member terms
    7. Support the Board Governance Committee in recruiting new Board members
    8. Fulfill other duties as the Board deems necessary
  2. Staff Oversight, Mentoring, and Support
    1. Provide oversight of staff operations in accordance with Board-approved Personnel Policies and the annual budget
    2. Be responsible for recruiting, employing, evaluating and mentoring qualified, competent staff and when necessary, terminating staff 
    3. Conduct regularly scheduled staff meetings to keep staff informed of IWMF activities, successes, and plans.
    4. Create and drive a culture in which staff work as a team, are highly productive, feel valued, and embrace a service mentality to the patients the IWMF serves
  3. Fiscal Management
    1. Work with the Board to develop the annual operating budget and a budget for any capital needs
    2. Work with the Board Treasurer to ensure implementation of the IWMF’s fiscal policies and procedures
    3. Work with the Board Treasurer to ensure the ongoing work of third party firms managing funds or investments for IWMF
    4. Provide timely financial reports to the Board
  1. Organizational Operations
    1. Oversee all administrative areas ensuring compliance with Board policies
    2. Sign, together with other individuals designated by the Board,  all notes, agreements, and other instruments made and entered into and on behalf of the organization
    3. Ensure transparency and openness in financial and programmatic operations
  1. Positioning the Organization and Engaging Stakeholders
    1. Represent and serve as the spokesperson for the IWMF to the general public
    2. Position the IWMF in the community it serves as a resource and source of information for those with WM and the families and caregivers that support them
    3. Engage and ensure ongoing cooperation and partnership with key organizations who partner with the IWMF in research for WM as well as pharmaceutical and other corporate funders who support the IWMF
    4. Engage and work closely with the community of researchers who conduct research on behalf of the IWMF
    5. Serve as the contact for press and media
  1. Fundraising
    1. Serve as IWMF’s chief fundraiser, managing a fundraising staff and meeting with the organization’s key individual, corporate, and foundation donors to express thanks, answer questions, and share the organization’s vision
    2. Work with the Board to ensure the organization has adequate resources to achieve its mission
    3. Manage a small portfolio of key donors
  1. Organizational Mission and Strategy
    1. Work with the Board in engaging in periodic strategic planning to set a clear vision, and objectives that will move the organization towards that vision so that the IWMF can effectively and successfully fulfill its mission on a short-term and long-term basis
    2. Implement, improve, and monitor the effectiveness of the IWMF’s member services
    3. Implement, improve, and monitor the effectiveness of the IWMF’s Strategic Research Roadmap and other research initiatives
    4. Grow and develop the IWMF’s international affiliate system


  • A Bachelor’s degree
  • Advanced degree a plus
  • Seven to eight years in the nonprofit sector with five or more years senior nonprofit management experience
  • Past success working with a Board with the ability to cultivate and engage board members in mission
  • Strong marketing, public relations and fundraising experience with the ability to engage a wide range of stakeholders and cultures
  • Experience in the healthcare field a plus


  • Transparent and high integrity leadership
  • Hands-on budget management skills, including budget preparation, analysis, decision-making and reporting
  • IT and digital savvy
  • Unwavering commitment to quality and data-driven program evaluation
  • Strength in risk management and internal controls
  • Excellence in organizational management with the ability to develop high-performance teams, set and achieve strategic objectives, manage a budget, program development, and task facilitation
  • The ability to collaborate with and motivate board members and other volunteers
  • Strong conflict resolution skills
  • Ability to interface with and engage diverse volunteer and donor groups
  • Demonstrated ability to oversee, mentor, and develop staff
  • Exceptional written and oral communication, public speaking and public relations skills
  • Clear understanding of fundraising strategies and donor stewardship
  • A commitment to and passion for the IWMF mission 
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