At the 2013 Ed Forum, the IWMF announced “Imagine a Cure,” a campaign with a goal of raising $9,000,000 by the end of 2016 to support vital member services and WM research through both current gifts and legacy gifts. The response was overwhelming and we surpassed our goal by the end of 2015. During the course of the campaign, new developments in research led to the first FDA-approved drug for WM, Ibrutinib. In May of 2015, the IWMF partnered with the Leukemia & Lymphoma Society (LLS) to bring together the best minds in WM research to create a new Strategic Research Roadmap that will allow us to continue progressing toward a cure. Because this new Strategic Research Roadmap will require a significant increase in funding, at the 2016 Ed Forum we announced an extension of the campaign for another five years and an increase in the goal to $25,000,000.
Every dollar donated for research is used to support an IWMF approved research project...not a single penny goes to overhead. Each research proposal received by the IWMF is vetted by our Scientific Advisory Committee, comprised of the most prominent WM researchers and clinicians from around the world and by our Research Committee. These are the WM research projects currently being supported by the IWMF, and these are former research projects supported by the IWMF.
Major gifts may be directed to a specific research project or to create your own named gift fund. Other gifts may be designated in support of the Dr. Robert A. Kyle and Charlene M. Kyle Endowment Fund
Because WM is such a rare disease, little funding comes from either the federal government or pharmaceutical companies. Funding must come from the WM patient community – patients and those who care about them. Because of scientific advances, and the past generosity of our supporters, the longevity of WM patients post-diagnosis has doubled over the past decade, and much more progress is on the horizon. There is no one else to carry this effort forward except us.
For those diagnosed before the year 2000, there were few treatment options. Because of the many advances that have resulted from IWMF-supported research, today there are multiple therapies available. This wouldn’t have happened without support from WMers like you!