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IWWM9 Ask the Doctor session

US and International Support Groups

Reach out to others for support. The IWMF Support Groups are the perfect place to talk with other people affected by WM, including patients, family members and caregivers. The groups provide mutual support and offer the opportunity to discuss concerns with others who share experiences with each other. This sharing strengthens the family bond and enhances everyone's ability to cope with WM. Not only are Support Groups a good source of information about WM from others who are living with the disease…but you’ll make new friends!

The IWMF, with its International Affiliates, has over 60 Support Groups worldwide, including groups throughout the US, in Argentina, Australia, Canada, many countries in Europe, India, Mexico and Taiwan. The list of US and International Support Groups and contact information can be found by using the drop down menus below. You can find a list of currently scheduled Support Group meetings here.

In some areas, Regional Contacts are available where a Support Group is not feasible due to the sparse population in the region or the lack of coverage by a Support Group Leader. Regional Contacts are WM patients or caregivers who are very interested in connecting with other WMers either by telephone or email to provide support and information to assist the person in managing and living well with WM.

You can join an existing Support Group by contacting the Support Group in your area. If there is no Support Group in your local area, and you would like to start one, please contact our IWMF Support Groups Coordinator, Marcia Klepac.

United States Support Groups and Regional Contacts

Alabama

Regional Contact

Mal & Judy Roseman
Last updated: 2016-01-25 13:21
Alaska

Regional Contact

Nancy Eby

907-746-6209
neby@mtaonline.net

Last updated: 2016-01-25 13:21
Arizona
Bill Bass

303-753-0070
303-808-5734 cell
basswilliam9@gmail.com

Last updated: 2017-05-25 12:07
Jim Bushey

602-751-2463
bushman1948@gmail.com

Last updated: 2017-05-25 12:07
Arkansas

Eastern

Bill & Connie Paul

901-767-6630
901-494-3049 cell
billpaultax@gmail.com

Last updated: 2016-02-01 09:13
California

Los Angeles Regional Contact

Blanche W. Moss

310-271-4042
moimoss@aol.com

Last updated: 2016-01-25 13:34

Los Angeles/Orange County

Marla Chao

917-699-3177
marlachao10@gmail.com

Last updated: 2017-01-27 21:52

Monterey Bay

Sandy Skillicorn

831-277-5274 cell
sandyskillicorn@gmail.com

Suzie Shook
831-439-9539, 831-345-8838 cell
shobbshook@gmail.com

Last updated: 2017-07-21 17:36

Northern

Alyce & Terry Rossow

925-447-8881
rossow@ieee.org

Last updated: 2016-10-06 16:43

San Diego Area

Kathleen Battle

909-273-0683 cell
kkbattle@aol.com

Last updated: 2017-01-27 21:58

South Bay Area

Patience Robinson
Last updated: 2018-08-21 13:09
Colorado
Bill Bass

303-753-0070 
303-808-5734 cell
basswilliam9@gmail.com

Last updated: 2016-01-25 13:47
Cindy Furst

970-227-4686
cindyfurst@gmail.com

Last updated: 2016-01-25 13:51
Elsa Bradley

719-548-1758
gegators@comcast.net

Last updated: 2016-03-12 17:41
Connecticut
Bob Hammond

203-426-2772
rhamm17@aol.com

Last updated: 2016-01-25 13:54
Robert Ulkus

860-228-3079
bobulkus@gmail.com

Last updated: 2016-11-22 15:29

Eastern

Linda McIntosh

860-460-6445
lynmac47@aol.com

Last updated: 2016-01-25 13:54
Delaware

Regional Contact

Jim Reed

302-858-7442 (cell)
jimreed101@aol.com

Last updated: 2018-02-01 16:25
District Of Columbia
Lu Kleppinger
Last updated: 2016-02-27 18:20
Florida

Central/Northern

Harriett Pawliger

352-331-7340 or 352-219-5674 cell
harrpaw@aol.com

Last updated: 2017-11-20 17:33
Susan Boulet
Last updated: 2017-11-20 17:36

Southern

Charlie Koch
Last updated: 2018-07-09 12:45

Southwest Regional Contact

Joe Gallo

941-493-1809
galljocon@verizon.net

Last updated: 2016-01-25 13:59
Georgia

Regional Contact

Mal & Judy Roseman
Last updated: 2016-01-25 14:00

Southern

Susan Boulet

sjboulet@cox.net

Harriett Pawliger
352-331-7340 or 352-219-5674 cell
harrpaw@aol.com

Last updated: 2017-11-20 18:18
Hawaii

Regional Contact

Sandy Skillicorn

831-277-5274 cell
sandyskillicorn@gmail.com

Last updated: 2016-01-25 14:00
Illinois

Chicago

Don Brown

630-323-5894
Ldonbrown@msn.com

Last updated: 2016-01-25 14:02
Indiana
Gayle Backmeyer

765-962-3746
765-969-1324 cell
divagayle@comcast.net

Last updated: 2018-02-01 16:31
Kansas

Eastern

Karen & Joe Davis

785-266-0121
karenjdavis@gmail.com

Last updated: 2016-01-25 14:04
Kentucky

Northern

Nancy Hess

937-672-4312 cell
nancyehess@gmail.com

Last updated: 2016-01-25 14:05
Louisiana

Regional Contact

Mindy Caplan

504-309-2247
mindycap@yahoo.com

Last updated: 2016-01-25 14:05
Maine
Konnie Stinson

207-838-9331
konstins@gmail.com

Last updated: 2016-01-25 14:07
Maryland

Eastern Maryland Regional Contact

Jim Reed

302-858-7442 (cell)
jimreed101@aol.com

Last updated: 2018-02-01 16:24

Western

Lu Kleppinger
Last updated: 2016-02-27 18:19
Massachusetts

Eastern MA

Eileen Sullivan
Last updated: 2016-09-22 16:46

Western MA

Mel Horowitz

518-449-8817
wmcure@yahoo.com

Last updated: 2016-01-25 14:06
Michigan

Eastern Lower Peninsula

Janice Wheeker

734-718-9437 cell
dwheeker@comcast.net

Last updated: 2018-04-30 12:31
Minnesota

Minneapolis/St. Paul

Michelle Blazek

651-730-0061
mandsblazek@aol.com

Eunice Quast
608-452-2840, 608-317-2547 cell
ejquast@mwt.net

Last updated: 2016-08-04 18:23
Mississippi
Bill & Connie Paul

901-767-6630
901-494-3049 cell
billpaultax@gmail.com

Last updated: 2016-02-01 09:12
Missouri

Northwestern (KC area)

Karen & Joe Davis

785-266-0121
karenjdavis@gmail.com

Last updated: 2016-01-25 14:09
Montana

Regional Contact

Cindy Furst
970-227-4686
Last updated: 2016-01-25 14:11
Nevada

Eastern Nevada Regional Contact

Gerri McDonald

801-484-0360
801-232-5811
gerri-sLc@comcast.net

Last updated: 2016-01-25 14:18
New Hampshire
Konnie Stinson

207-838-9331
konstins@gmail.com

Last updated: 2016-01-25 14:14
New Jersey

Southern NJ

Lisa Wise

650-400-0046
wiseplace@gmail.com

Last updated: 2016-01-25 14:17
New Mexico

Albuquerque

Ginny-Kay Massara

505-306-8559
ginnykay711@gmail.com

Last updated: 2016-01-25 14:18

Southern Regional Contact

Bill Bilbro

575-642-4987
wbilbro@gmail.com

Last updated: 2016-01-25 14:18
New York

Eastern New York/Western New England

Mel Horowitz

518-449-8817
wmcure@yahoo.com

Last updated: 2016-09-22 16:51

New York City

Mitch Orfuss

646-352-4476
morfuss@aol.com

Last updated: 2016-01-25 14:19

Rochester, Western and Central

Lynn Milliman

585-200-3914
lcmilliman@gmail.com

Last updated: 2016-11-11 13:35
North Carolina
Susan and Carl Stoel

919-285-3000
carlstoe@hotmail.com

Last updated: 2017-10-11 08:22
North Dakota

Regional Contact

Cindy Furst

970-227-4686
cindyfurst@gmail.com

Last updated: 2016-01-25 14:14
Ohio

Central/Northwestern Regional Contact

Ron Payne
Last updated: 2016-11-03 16:59

Eastern

Marcia Klepac
Last updated: 2016-01-25 14:21
Shariann Hall
330-533-4921
Last updated: 2016-01-25 14:22

Southwestern

Nancy Hess

937-672-4312 cell
nancyehess@gmail.com

Last updated: 2016-01-25 14:23
Oklahoma

Regional Contact

Bill Bilbro
575-642-4987
wbilbro@gmail.com
Last updated: 2016-01-25 14:26
Oregon
Joel Rosenblit

503-365-7074, 971-209-5710 (cell)
rosenblitj@gmail.com

Last updated: 2016-01-25 14:33
Marie Navarra

503-409-0844
marieanavarra@aol.com

Cindy Jordan
541-242-5864
cjjordan2@earthlink.net

Last updated: 2018-02-12 08:25
Pennsylvania

Eastern PA

Lisa Wise

650-400-0046
wiseplace@gmail.com

Last updated: 2016-01-25 14:33

Susquehanna Valley/South Central

Terrie Eshleman

717-665-7393
tmesh74@ptd.net

Jim Reed
302-858-7442 (cell)
jimreed101@aol.com

Last updated: 2018-02-01 16:29

Western

Marcia Klepac
Last updated: 2016-01-25 14:35
Shariann Hall
330-533-4921
Last updated: 2016-01-25 14:34
Rhode Island
Linda McIntosh

860-460-6445
lynmac47@aol.com

Last updated: 2016-01-25 14:36
South Carolina
Roger and Barbara Robinette

864-942-0828, 864-337-6778
rogerlrobinette@gmail.com

Paula Austin
803-644-6002
jhaustin@bellsouth.net 

 

Last updated: 2018-03-21 09:54
South Dakota

Regional Contact

Cindy Furst

970-227-4686
cindyfurst@gmail.com

Last updated: 2016-01-25 14:36
Tennessee

Central & Western

Bill & Connie Paul

901-767-6630
901-494-3049 cell
billpaultax@gmail.com

Last updated: 2016-02-01 09:11
Texas

Dallas

Steve Pine

214-244-5515
slpine001@gmail.com

Judy Francis
Judy.francis@level3.com

Last updated: 2017-03-30 18:20

Houston

Dr. Barbara and John Manousso

713-840-0828
wm@manousso.us

Last updated: 2016-01-25 14:39

Western Regional Contact

Bill Bilbro

575-642-4987
wbilbro@gmail.com

Last updated: 2016-01-25 14:39
Utah

Regional Contact

Gerri McDonald

801-484-0360, 801-232-5811
gerri-slc@comcast.net

Last updated: 2016-02-03 08:50
Vermont
Mel Horowitz

518-449-8817
wmcure@yahoo.com

Last updated: 2016-09-22 16:50
Virginia

Northern

Lu Kleppinger
Last updated: 2016-02-27 18:17

Western/Central

Deborah and David Barksdale
Last updated: 2018-11-26 16:28
Washington

Northwest (Seattle Area)

Shirley Ganse
Last updated: 2016-01-25 14:41

Southwest

Joel Rosenblit

503-365-7074, 971-209-5710 (cell)
rosenblitj@gmail.com

Last updated: 2018-08-30 15:32
Marie Navarra

503-409-0844
marieanavarra@aol.com

Cindy Jordan
541-242-5864
cjjordan2@earthlink.net

Last updated: 2018-08-30 15:34
West Virginia
Marcia Klepac
Last updated: 2016-06-25 14:00
Shariann Hall
330-533-4921
Last updated: 2016-01-25 14:43
Wisconsin

Southeastern

Don Brown
630-323-5894
Last updated: 2016-08-04 18:29

Western

Michelle Blazek

651-730-0061
mandsblazek@aol.com

Eunice Quast
608-452-2840, 608-317-2547 cell
ejquast@mwt.net

Last updated: 2016-08-04 18:27
Wyoming

Regional Contact

Cindy Furst

970-227-4686
cindyfurst@gmail.com

Last updated: 2016-03-12 17:46

Southern

Bill Bass

303-753-0070, 303-808-5734 cell
Basswilliam9@gmail.com

Last updated: 2016-03-12 20:03
Cindy Furst

970-227-4686
cindyfurst@gmail.com

Last updated: 2016-03-12 17:53
Elsa Bradley

719-548-1758
gegators@comcast.net

Last updated: 2016-03-12 17:56

International Support Groups and Regional Contacts

Argentina

Buenos Aires
Graciela Molina, MD
Last Updated: 2016-04-17 22:29

Australia

Adelaide
Peter Diamond, Leukaemia Foundation

+61 8 8169 6035
pdiamond@leukaemia.org.au

Last Updated: 2016-04-17 22:30
Brisbane
Peter Carr, WMozzies

+61 7 5529 0518
petercarr@iprimus.com.au

Nicole Douglas, Leukaemia Foundation
+61 7 3259 1000
ndouglas@leukaemia.org.au

Last Updated: 2016-04-17 22:32
Melbourne
Steve Higgs, Leukaemia Foundation

+61 3 9949 5800
shiggs@leukaemia.org.au

Karen Matoga, Leukaemia Foundation
+61 3 9949 5800
kmatoga@leukaemia.org.au

Last Updated: 2016-08-31 14:26
Perth
Peter Marfleet, WMozzies

+61 4 1043 6666
pem@bigpond.com

Frankie Bird, Leukaemia Foundation
+61 8 6241 1000
fbird@leukaemia.org.au

Last Updated: 2016-08-31 14:35
Sydney
Andrew Warden, WMozzies

+61 2 9974 2277
andrew.warden@bigpond.com

Madeleine Thompson, Leukaemia Foundation
+61 2 9902 2222
mthompson@leukaemia.org.au

Last Updated: 2016-04-17 22:36

Belgium

Jeannot Poelman
Last Updated: 2018-06-28 09:13

Canada

Alberta
Stu Boland

403-281-0271
stu_boland@hotmail.com

Cam Fraser
403-281-8278
cmfraser@shaw.ca

Last Updated: 2015-03-23 15:23
Nova Scotia
Jim Mason

902-446-9557, 902-818-5288 (cell)
jimfarmhouse@gmail.com

Ron Ternoway
902-405-6986, 866-768-8467
rternoway@eastlink.ca

Last Updated: 2015-10-30 08:36
Oakville
Arlene Hinchcliffe

905-337-2450
ahinchcliffe@wmfc.ca
 

Last Updated: 2018-05-24 18:31
Ottawa
Janet Cherry

613-596-1413
jmpcherry@hotmail.com

Last Updated: 2018-02-27 17:47
Toronto
Betty McPhee

647-625-7440
bjmcphee@hotmail.com

Last Updated: 2018-02-28 09:28
Vancouver
TBD
Last Updated: 2018-05-24 18:32

China

Roger Yao

+0086 1391 8486 140
roger@huashijuqiu.com
Roger Yao

Last Updated: 2018-08-21 22:23

Denmark

Susanne Ohrn

+46 730 21 22 68
Susanneohrn@yahoo.se

Last Updated: 2016-10-22 05:02

Finland

Juha Wirekoski
Last Updated: 2018-11-26 16:27

France

Denis Beaugeard

Contact: Rainer Benda
Phone: +33 2 47200334
Email: ar.benda@orange.fr

Last Updated: 2018-12-09 12:20

Germany

Anita Waldmann

+49 61 423 2123
a.waldmann@LHRM.de

Last Updated: 2016-03-02 14:12

Greece

Regional Contact
Alexia Kapralou
Last Updated: 2015-01-28 14:50

India

Saurabh Seroo

+91 80 4110 1002
saurabh@wmindia.org

Regional Contacts

Anil and Vasundhara Somani
+91 98 3004 9300
anilksomani@gmail.com

Rajat and Meena Saha
+91 90 5151 0102
rrsaha2@gmail.com

Last Updated: 2018-11-27 14:25
Rajini Seroo
Last Updated: 2018-11-26 16:10

Ireland

Sheila Thomson
Last Updated: 2016-02-03 08:59

Italy

Marco Brusati

+39 02 64 25 891 or
+39 02 29 511 341
fondazione@malattiedelsangue.org
wm_it@malattiedelsangue.org

Last Updated: 2018-11-26 18:47

Mexico

Leopoldo (Polo) Peña

+551 3205 137
polo.pena23@gmail.com

 

Last Updated: 2017-08-29 08:37

Netherlands

Tine van der Schaaf

+31 297 241192
t.vanderschaaf@ziggo.nl

Last Updated: 2017-07-28 17:30

New Zealand

Lea Hullett

Mobile + 0064 27 6860735
Lea.hullett@gmail.com

Last Updated: 2018-02-04 16:57

Norway

Susanne Ohrn

+46 730 21 22 68
Susanneohrn@yahoo.se

Last Updated: 2016-10-22 05:05

Spain

Navarra
Miguel Angel Berrueta

+34 629 506 006
berruetadecora@gmail.com

Last Updated: 2016-04-17 22:37

Sweden

Susanne Ohrn

+46 730 21 22 68
Susanneohrn@yahoo.se

Last Updated: 2016-10-22 05:06

Taiwan

Jyh-Seng Wang, MD

+886 7 342 2121 ext. 6318
jswang@vghks.gov.tw

Last Updated: 2016-04-17 22:38

United Kingdom

Roger Brown

+44 20 8281 6477
info@wmuk.org.uk

Last Updated: 2016-02-03 09:02

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