To use IWMF Connect, you can either visit the discussion group page online or send an email message to the group. Once a message is posted or emailed, all IWMF Connect group members will be able to view your message and respond to it. There are typically 20-30 messages per day. NOTE: you CAN set up your subscription to the group so that you are either notified immediately each time a message is sent or notified on a less frequent basis. Instructions for doing so are provided via the link below at “How to Manage Your IWMF Connect Subscription.”
You can join IWMF Connect by going to https://groups.io/g/iwmfconnect(link is external) and clicking the “Sign Up” icon in the upper right hand corner.
Information for using IWMF Connect can be found in the following PDF guidelines:
- How to Manage Your IWMF Connect Account Settings
- How to Manage Your IWMF Connect Subscription
- How to Send a Message to IWMF Connect
- How to Use IWMF Connect Hashtags
- IWMF Connect Participation Rules and Etiquette
- IWMF Connect Participation Rules and Etiquette-3 Main Points
Any questions can be directed at the IWMF Home Office at Office@iwmf.com
IWMF members may also participate in the following Internet-based WM group discussion forums:
- Australia Facebook Group: (https://www.facebook.com/groups/WaldenstromsLF/)
- France Talk-List (http://portail.waldenstromfrance.org(link is external))
- Italy (WM_IT) Talk-List – (http://groups.google.com/group/wm_it(link is external))
- UK (WMUK) Talk-List ( https://groups.io/g/wmuk )
- WM Complementary and Alternative Medicine Online Forum (https://groups.yahoo.com/neo/groups/WMCaM/info(link is external))
- Rare Disease Connect WM Community (https://www.rareconnect.org/en/community/waldenstrom-macroglobulinemia/forum(link is external))
- Facebook “Waldenstrom Macroglobulinemia Support Group” (https://www.facebook.com/groups/wmsupportgroup)
- WMUK Private Facebook Group: Join the WMUK Facebook group