Cancer is an expensive illness, and it is often a challenge to keep up with the additional costs you may experience after being diagnosed. The Leukemia and Lymphoma Society (LLS) publication Cancer and Your Finances provides guidance about health insurance, government programs and financial assistance programs. It also provides information about the US Affordable Care Act (ACA). We also encourage you to check with the organizations below to see if financial assistance is currently available.
Assistance from Non-Profit Foundations
The Leukemia & Lymphoma Society (LLS) Co-Pay Assistance Program for WM Patients in the US
The Leukemia & Lymphoma Society (LLS) Co-Pay Assistance Program offers financial help toward treatment-related co-payments, premiums for private health insurance, and premiums and co-pay obligations for Medicare Part B, Medicare Plan D, Medicare Supplementary Health Insurance, Medicare Advantage, and Medicaid Spend-down.
Assistance to WM patients is awarded for a 12-month coverage period, and the maximum award available may vary from year-to-year. To be eligible, a patient must meet the following requirements:
- Have a household income that is at or below 500% of the Federal Poverty Guidelines as adjusted by the Cost of Living Index (COLI). Example Federal Poverty Levels can be viewed here.
- Be a US citizen or permanent resident of the US or Puerto Rico and be medically and financially qualified.
- Have prescription insurance coverage.
- Have a WM diagnosis confirmed by a doctor.
You can find more information about the program, including a list of covered expenses, and how to apply here.
The Leukemia & Lymphoma Society (LLS) Patient Travel Assistance Program
The Leukemia & Lymphoma Society's (LLS) Patient Travel Assistance Program is available to blood cancer patients in the US, with significant financial need, who may qualify to receive financial assistance for approved expenses that include: ground transportation (gas, tolls, car rental, taxi, bus, train, ambulance services, etc.), air travel, and lodging-related expenses, You can find more information about this program including eligibility requirements and how to apply here.
PAN Foundation Prescription Co-Pay Assistance
WM patients in the US may be eligible to receive financial assistance from the Patient Access Network (PAN) Foundation to help with high prescription co-pays and deductibles for drugs used to treat WM. WM patients can qualify for PAN assistance as part of its Non-Hodgkin's Lymphoma Program, which allows a maximum award over 12 months for prescription cancer treatment. The amount of the maximum award may vary from year-to-year.
In order for patients to qualify for co-payment assistance with Patient Access Network, they must meet the following eligibility criteria:
- The patient should be insured, and insurance must cover the medication for which the patient seeks assistance.
- The medication must treat the illness directly.
- The patient must reside in and receive treatment in the United States.
- The patient’s income must fall at or below 400% or 500% of the Federal Poverty Level. (Federal Poverty Levels can be viewed here.)
Details and information on how to apply can be found here.
CancerCare - provides limited financial assistance to people affected by cancer. Information on this program, availability and qualifications can be found at www.cancercare.org/financial.
Lymphoma Research Foundation – offers a list of additional organizations that may, from time to time, provide financial assistance for people undergoing treatment for lymphoma, which can be found on their website here.
Triage Cancer – offers financial tips, tools, and links to additional organizations that provide financial support on their website.
Assistance from Pharmaceutical Companies
The potential cost of novel oral medications such as IMBRUVICA® (ibrutinib) is a recent and growing concern to the WM community. The Johnson & Johnson Patient Assistance Foundation provides assistance to uninsured US patients who lack the financial resources to pay for certain medicines, including IMBRUVICA®. To see if you qualify, call the Johnson & Johnson Patient Assistance Foundation at 800-652-6227 or visit its website at www.jjpaf.org.
Patients with limited financial resources taking medications marketed by other pharmaceutical companies are encouraged to contact the financial assistance programs of those respective pharmaceutical companies - in many cases, some form of help is available for those in need.