Did you know?

The IWMF raised more than five million dollars for WM medical research

Did you know?

The IWMF raised more than 60 support groups in North America and nearly 20 others world-wide

Did you know?

The IWMF has a current worldwide membership of nearly 4,000

Did you know?

IWMF-TALK is a wonderful place to share information and learn from other survivors

Did you know?

Each year 1,500 new cases of Waldenstrom's macroglobulinemia are diagnosed in the USA

Did you know?

Volunteers at the IWMF Telephone Lifeline are waiting to share their experiences with you

Did you know?

You can order DVD recordings of past WM Educational Forums online or by mail

Did you know?

All IWMF programs and services are funded by WM survivors, caregivers, friends, and family

Surveys and Questionnaires

 

While WM is a rare disease, from time to time, medical professionals and experts in the research community take note of the need for more research with regards to WM, and ask for our assistance. 

 

In many cases, this involves something as simple as completing a questionnaire or survey about our condition. Listed below are several opportunities for us to be "heroes" who help lead to exciting research findings in the future.

 

DFCI/GHOBRIAL TISSUE BANK STUDY - Dr. Irene Ghobrial of the Dana Farber Cancer Institute has applied for and received a grant to crate a tissue bank for WM and make it available to IWMF research grantees and other researchers.  Part of her project also involves collecting demographic and medical history information from WM patients via a questionnaire.  To find out more and complete a questionnaire, please click here.  Patients can go directly to the questionnaire online at:  https://redcap.partners.org/redcap/surveys/?s=7JxV9u
(first posted May, 2012)


CART-WHEEL - based in Australia, but global in nature.  It is the first ethically-approved website for consumer-driven data for rare tumours or rare subtypes of common tumours.  In addition, they have partnered with the IWMF and the WM community in Australia (WMOzzies) to tailor the questionnaire to also help better understand the nature of WM.  For more information, and to participate, click here or go directly to their website at http://www.cart-wheel.org.

(first posted May, 2012)

 

LYMPHOMA COALITION -  the coalition is a global network of worldwide non-profit lymphoma patient organizations (including the IWMF) with a vision to free the world of lymphoma (http://www.lymphomacoalition.org).  Every two years, they solicit patients to provide information via questionnaires.