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Videos about the IWMF

Video Shorts About WM and the IWMF

Interviews with Researchers, Patients, and Caregivers at the 2015 Ed Forum

Video Speaker & Topic

Length

(minutes)

Stephen M. Ansell, MD, PhD, Mayo Clinic

Dr. Ansell talks about his interest in WM, the funding provided by the IWMF for his research, and the team effort he is involved in with WM patients and the IWMF.  He also discusses the current exciting times for WM in terms of research, with opportunities for improved treatments and the possibility of a cure in the near future.

2:39

Peter DeNardis, Patient/IWMF Trustee

Peter, a patient and IWMF Trustee, discusses the benefits to patients and caregivers of  IWMF-TALK (an online discussion forum) and the importance of being "empowered" patients.

4:51

Morie Gertz, MD, MACP

Mayo Clinic

Dr. Gertz talks about the Mayo Clinic approach to treating WM patients and the impact that IWMF funding for research has had on the search for improved treatments and a cure for WM.

3:15

Lee Greenberger, PhD
Chief Scientific Officer, Leukemia & Lymphoma Society

Dr. Greenberger discusses the LLS's plans to support the IWMF with new research that could lead to a better understanding of the disease and in turn could support the development of novel treatments and a cure. He also provides a quick summary of the importance of immune system modulation/immunotherapy research.

5:56

Zachary Hunter, PhD
Dana-Farber Cancer Institute

Dr. Hunter speaks about his research into WM with Dr. Treon at DFCI. He specifically mentions the importance of basic scientific research and the IWMF's role in that research.  He also reveals that there is familial WM in his family, along with close family friends.

5:32

Lu Kleppinger
Patient/IWMF Support Group Leader

A WM patient, Lu covers her experience at diagnosis, discusses tips for what a first time patient should do, and encourages folks to take advantage of the IWMF's services and to become active in the Foundation.

5:15

Robert Kyle, MD
Mayo Clinic

Dr. Kyle speaks on a range of topics: his background and early days treating WM patients; the many benefits provided by the IWMF, especially to the newly diagnosed; the critical role of IWMF-funded research; the future of research; and the promising days ahead for better management of WM. 

14:54

Mary McMaster, MD
National Cancer Institute Researcher

Dr. McMaster explains how she came to be involved with WM and discusses her interest and research into the familial aspects of WM at the US National Cancer Institute.

5:05

Julie Nielsen, PhD
BC Cancer Agency, Canada

Dr. Nielsen talks about what led her to focus on WM and on immune-based T-cell research. She also provides insight into the promise that these new research areas hold for developing new and better treatments for WM patients.

2:31

Gilbert Scherer, Caregiver

As a caregiver, Gilbert discusses how he and his wife dealt with a WM diagnosis and were educated by engaging with the IWMF, attending an IWMF Ed Forum, and volunteering for the Foundation. His words speak volumes about the benefit of joining the IWMF and taking advantage of the services that it offers, as well as the importance of funding the IWMF to drive the basic research that is so vital for better treatments, and ultimately, a cure.

9:31

Michael Sesnowitz
Patient/IWMF Vice President for Fundraising

A WM patient and the IWMF Vice President for Fundraising,  Michael discusses his challenges at diagnosis, the services provided by the IWMF, and the advantages of using those services. He also encourages everyone to give to the IWMF so that it can continue to provide these services to patients and caregivers and to fund research toward finding a cure.

2:48

Steven P. Treon, MD, PhD
Dana-Farber Cancer Institute

Dr. Treon discusses his interest in WM and WM research, focusing on the whole genome sequencing research supported by the IWMF that helped make the critical discoveries of the MYD88 and CXCR4 mutations. He also mentions that continued funding of WM research is critical to future success in managing the disease.

2:47

Lisa Wise
Patient/IWMF Support Group Leader

As a WM patient, Lisa talks about her diagnosis and the benefits provided by the IWMF. She also discusses her initial reluctance to attend a Support Group and her subsequent realization that the Group has been of great support to her personally.

4:29
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