Did you know?

The IWMF raised more than five million dollars for WM medical research

Did you know?

The IWMF raised more than 60 support groups in North America and nearly 20 others world-wide

Did you know?

The IWMF has a current worldwide membership of nearly 4,000

Did you know?

IWMF-TALK is a wonderful place to share information and learn from other survivors

Did you know?

Each year 1,500 new cases of Waldenstrom's macroglobulinemia are diagnosed in the USA

Did you know?

Volunteers at the IWMF Telephone Lifeline are waiting to share their experiences with you

Did you know?

You can order DVD recordings of past WM Educational Forums online or by mail

Did you know?

All IWMF programs and services are funded by WM survivors, caregivers, friends, and family

General Volunteer Opportunities

The IWMF is an organization established and run by volunteers.  While the office in Sarasota, Florida, is run by an office manager with a small staff, the Officers and Trustees, committee chairpersons, and support group leaders are all volunteers. The annual Educational Forum, other meetings and educational opportunities, advocacy, fundraising, and many other activities are handled by volunteers. And it takes a tremendous amount of effort on their part to make us as successful as we are!

Because we are a small, wide-spread organization there is no common meeting place for volunteers to gather and help. Most of our publications and mailing activities are automated. The volunteers we need are those with specific skills and experience.

Listed below are some of the areas where we very much need volunteers to help.

  • Fundraising, especially in development of pharmaceutical and corporate programs
  • Any other kind of fundraising campaign, from hike-a-thons to charity events
  • Publication, especially writing and editing of technical documents
  • Translation of IWMF documents into other languages
  • Development of new support groups in areas where we are not yet represented
  • Political advocacy support, if you know your way around Capitol Hill
  • Internet communication and website development
  • Lifeline telephone contact persons
  • Assistance with the annual Educational Forum
  • Service on committees
  • Publicity and media relations

Committee assignments are continually changing, but current chairpersons are:

Corporate and Organizational Relations:
Carl Harrington, President,

Scientific Medical Research:
Guy Sherwood, VP Research,

Educational Forum:
Carl Harrington, President,

Website Manager & IWMF-Talk Manager:
Peter DeNardis, Trustee,

Support Group Development:
Marcia Klepac, Trustee,

Michael Sesnowitz, VP For Fundraising,

Torch Newsletter:
Alice Riginos, Editor, 



Sue Herms, Trustee,


Cynthia Ruhl, Secretary/Treasurer,

Government Liaison:
Carl Harrington, President,

General and Administrative Activities:
Sara McKinnie, Office Manager,

International Affiliates:
Guy Sherwood, Trustee,

Elena Malunis, VP Member Services,


Outreach and Membership:
Sara McKinnie, Office Manager,


Judith May,


We need your help. If there are areas listed above where you can be of assistance, please contact the relevant committee chairperson. If you have expertise, interest, and experience in other areas not listed above that can help the IWMF, please contact the office at and you will be directed to the appropriate person.

Remember, the IWMF can only remain strong and viable through the continued involvement, commitment, and generosity of patients, caregivers, and friends such as yourself.