President's Message


It is a great pleasure to welcome you to the IWMF website, a place where you can find a variety of ways to network with other patients and where you will gain valuable information about our disease, Waldenstrom’s macroglobulinemia, or “WM” as it is commonly called.

 

WM is a rare lymphoma and information about the disease and treatment therapies is not easy to find.  A major goal of the Foundation’s mission is to serve as a resource in providing you with the best and most current information available through IWMF educational materials and through links to other helpful scientific resources.

 

Patients and caregivers will not only find support groups for connecting with others facing similar challenges, but also the opportunity to communicate with each other through our online IWMF-Talk discussion list.  We sponsor the annual IWMF Educational Forum where patients can meet top WM experts to hear the most recent research results and treatment therapies, and also meet with each other and benefit from learning of other patients' experiences with the disease.  Additionally, the IWMF is committed to promoting and supporting research leading to a cure.

 

Our goal is to help every patient successfully face the challenges of living with WM. We hope you will read through the information on this website and that you will find it user-friendly and useful. The IWMF website will be updated frequently and we hope that you will visit often.

 

Judith May
President, IWMF

 

Survivors' Corner


We believe you will find a fresh breath of hope in this section of inspirational messages from survivors who provide personal stories of their lives with WM.

 

These stories offer important insights about how one lives well with Waldenstrom’s. You will read over and over how WM has changed their lives, how the reality of cancer has made life more precious, how personal priorities have changed, how these WM survivors have become more thoughtful of loved ones and grateful for each and every day of precious life.

 

We hope you will enjoy these diverse examples of how WM patients are not merely surviving but living well--and even thriving.

 

Click here to read their stories.