Did you know?

The IWMF raised more than five million dollars for WM medical research

Did you know?

The IWMF raised more than 60 support groups in North America and nearly 20 others world-wide

Did you know?

The IWMF has a current worldwide membership of nearly 4,000

Did you know?

IWMF-TALK is a wonderful place to share information and learn from other survivors

Did you know?

Each year 1,500 new cases of Waldenstrom's macroglobulinemia are diagnosed in the USA

Did you know?

Volunteers at the IWMF Telephone Lifeline are waiting to share their experiences with you

Did you know?

You can order DVD recordings of past WM Educational Forums online or by mail

Did you know?

All IWMF programs and services are funded by WM survivors, caregivers, friends, and family

Gifts For Research

Note: all donations will be considered part of the Imagine a Cure Campaign.

(Click here for more information about the campaign). If you prefer to mail or fax your gift, please click here to download a PDF version of the special Imagine a Cure Pledge Form.

 

Thank you for considering a gift to the IWMF Research Fund.  A gift to the Fund will be used to exclusively support Waldenstrom’s macroglobulinemia (WM) research. There are many types of research that will benefit WM patients and there are many ways to designate your gift.

 

You may make an online gift to one of the IWMF Research funds by clicking on the big orange Make a Research Gift button above. If you prefer to mail or fax your gift, please click here to download a PDF version of the IWMF Research Giving and Contact Request Form.As a nonprofit organization under Section 501 (c)(3) of the Internal Revenue Code, the IWMF will issue tax receipts for all gifts.

 

RESEARCH FUND: THE GOAL

 

The purpose of the Research Fund is to raise money to support research leading to a better understanding of WM, more effective treatment, and an ultimate cure.

 

Here are some examples of research projects completed and of those that are envisioned:

 

Previously funded research includes:

  • Molecular profiling of WM cells for new targets for drug therapies.
  • New targets for drug development to control IgM producing cells (BLyS).
  • WM mouse models to screen potential new drug treatments.
  • Research on origins and distinctive features of WM cells.
  • Follow-up on viability of stem cell transplants.
  • Development of WM cell lines for testing drugs to combat WM.
  • Identification of the genetic profiles of WM patients versus people without the disease.

Current and projected research:

  • Continued investigation of BLyS, a molecule that plays a role in the proliferation and survival of malignant cells.
  • Research on genetic abnormalities that may be familial and may affect the development and survival of the WM cell.
  • Examination of the genetic causes of the reduced production of IgG and IgA (antibodies) in WM patients.
  • Investigation of cytokines that affect the growth and survival of WM cells in the bone marrow.
  • Promotion of an understanding and development of therapy for neuropathy.
  • Studies of the “cancer stem cell” as it relates to WM.
  • Investigation of hte tumor microenvironment's effect on disease progression.
  • Establishment of a WM tissue bank for researhers arouind the world.
     

Click on the titles below for more information on ways you can give to the IWMF Research Fund.

 

UNRESTRICTED GIFT »

Your gift in this category will be used for WM research and may optionally be designated in tribute of or in memory of a person of your choice.


The in tribute gift is for those who wish to send a gift to the IWMF to acknowledge a friend, family member, colleague, or a special person associated with an upcoming special occasion such as a wedding, birthday, anniversary, holiday, etc.

 

The in memory gift is to serve you and your loved ones during difficult times as accompaniment to a personalized condolence or “in memoriam” gift.

 

Donors who have made gifts in honor or in memory, as well the names of the person(s) honored or commemorated, are listed in the Torch. Please click here to make an Unrestricted Gift. 


DR. ROBERT A. KYLE AND CHARLENE M. KYLE ENDOWMENT FUND »

Dr. and Mrs. KyleIn honor of Dr. Robert A. Kyle and Mrs. Charlene M. Kyle, the first ever endowment program for the IWMF was established in 2009. The goal of this very important project is to raise one million dollars. The annual interest earned on the Kyle Endowment Fund will be used to sponsor research initiatives.

Everyone in our WM community knows Bob Kyle. Bob is a presenter at every IWMF Educational Forum and he is featured in many issues of the Torch. He travels from one end of the globe to the other presenting lectures on WM and related cancers. From small support group meetings in church halls in Minnesota to the Stockholm research workshop, he enlightens both the newest patients as well as the veteran medical researchers on subjects of interest. He has received many national and international awards from the most prominent sources in the field of cancer. In the WM world, it is safe to say that he is known as the "godfather of WM," having mentored many doctors who are now involved in WM research and treating WM patients.

Bob Kyle was a friend of Dr. Jan Waldenström, who discovered our disease. He is also a friend to Dr. Waldenström’s son, Dr. Anders Waldenström. Dr. Kyle is a special advisor and friend to the IWMF Board of Trustees. He is a charter member of the IWMF Scientific Advisory Committee and has been the Chair of that committee for many years.

Dr. Kyle has not only treated many WM patients in his long career but is also a pioneer researcher in WM. We owe Bob Kyle our highest respect and appreciation for his continued interest in our disease.

As a tribute to his outstanding contributions to the IWMF and its entire membership, the Board of Trustees of the IWMF has established the Dr. Robert A. Kyle and Mrs. Charlene M. Kyle Endowment Fund – the first endowed fund of the IWMF. The annual income from this fund will be used for activities, strategies, and programs associated with the IWMF Research Fund as determined by the IWMF Board. Please click here to give to the R.A. and C.M. Kyle Endowment Fund.

 

NAMING OPPORTUNITIES »

Projects or programs in tribute to a person or in memory of a patient are provided through the tribute and memory cards mentioned above, usually at a comparatively lower level of giving. The Imagine a Cure campaign provides naming opportunities for individuals at a higher level. Endowment options may be considered in this area. See the Dr. Kyle Fund for an example. If you have an interest, please click here to initiate an Individual Naming Opportunity.
Recommended funding range: $50,000-$1,000,000

 

ESTATE OR PLANNED GIVING »

In general, estate or planned giving options fall under three categories: bequests (estate gifts), life income, and other planned giving vehicles. Click here for more information on this opportunity.

 

 

BEN RUDE HERITAGE SOCIETY »

The Ben Rude Heritage Society is so named in recognition of the second president of the International Waldenstrom’s Macroglobulinemia Foundation (IWMF). Ben Rude served as president for over four years before he passed on in January 2005, but his legacy continues thanks to the leadership demonstrated by the members of this society. Join other members of this honorary society and help make Ben’s dream of a cure for Waldenstrom’s macroglobulinemia (WM) come true. Ben’s spouse, Laurie Rude, serves as the founding Honorary Chairperson of the Ben Rude Heritage Society.

 

This society was established by the Board of Trustees in 2008, and its founding members were recognized during the 2008 IWMF Educational Forum in Los Angeles. Each year the Trustees are pleased to honor new members of this society who have followed Ben’s legacy of leadership with various types of deferred gifts to the IWMF such as a bequest, a gift annuity, a trust arrangement, an insurance policy, or a similar planned gift.

 

A legacy gift is the ultimate expression of support for the IWMF. Through your planned estate gift and your participation in the Ben Rude Heritage Society you can touch the lives of others as we strive to find the cause and a cure for WM. To date, almost $300,000 in legacy gifts have been pledged or received. Placing your treasure in the care of our Foundation will ensure benefits for others long into the future. As Ben shared often, “A person’s life is measured by the effort made for the benefit of others.”

 

If you would like to include the IWMF in your estate plans, please call Dave Benson, Senior Development Officer, at 952-837-9980.

 

Please click here to download a copy of The Ben Rude Heritage Society enrollment form.

 

As a nonprofit organization under Section 501 (c)(3) of the Internal Revenue Code, the IWMF will issue tax receipts for all gifts.