You may make an online gift to one of the IWMF Research funds by clicking on the big orange Make a Research Gift button above. If you prefer to mail or fax your gift, please click here to download a PDF version of the IWMF Research Giving and Contact Request Form.As a nonprofit organization under Section 501 (c)(3) of the Internal Revenue Code, the IWMF will issue tax receipts for all gifts.
The purpose of the Research Fund is to raise money to support research leading to a better understanding of WM, more effective treatment, and an ultimate cure.
Two major strategies have been created in recent years to meet this goal: the Research Fund campaign was established in 2005, and the strategy of $5 million to be raised in 5 years (5-in-5) was created more recently with a variety of new gifting options.
Here are some examples of research projects completed and of those that are envisioned:
UNRESTRICTED GIFT »
Your gift in this category will be used for WM research and may optionally be designated in tribute of or in memory of a person of your choice.
The in tribute gift is for those who wish to send a gift to the IWMF to acknowledge a friend, family member, colleague, or a special person associated with an upcoming special occasion such as a wedding, birthday, anniversary, holiday, etc.
The in memory gift is to serve you and your loved ones during difficult times as accompaniment to a personalized condolence or “in memoriam” gift.
Donors who have made gifts in honor or in memory, as well the names of the person(s) honored or commemorated, are listed in the Torch. Please click here to make an Unrestricted Gift.
INCENTIVE FUND »
The Incentive Fund is designed to encourage participation from a broader constituency by doubling the dollars contributed. We were able to start the "double your dollar" program because of a $100,000 establishment gift from a Trustee and several other donors of significance. But we need more “philanthropic investors” to help seed the fund as we strive to complete a successful campaign.
If you accept the challenge and have an interest in giving $25,000 or more to continue to “seed” the project, or in making a gift to the Incentive Fund of less than $25,000, please click here to give to the Incentive Fund
and help us achieve success through this double-dollar project!
NAMING OPPORTUNITIES FOR FOUNDATIONS, COMPANIES AND ORGANIZATIONS »
Foundations, companies, and organizations may wish to focus their resources on specific scientific or medical research projects. This kind of philanthropic investment justifies naming the project after the leader of a company, foundation, or organization in return for its gift or grant. If your organization has an interest, please click here to request a Naming Opportunity
or contact Carl Harrington at 215-519-8175.
Recommended funding range:
$10,000 or above.
DR. ROBERT A. KYLE AND CHARLENE M. KYLE ENDOWMENT FUND »
In honor of Dr. Robert A. Kyle and Mrs. Charlene M. Kyle, the first ever endowment program for the IWMF was established in 2009. The goal of this very important project is to raise one million dollars. The annual interest earned on the Kyle Endowment Fund will be used to sponsor research initiatives.
Everyone in our WM community knows Bob Kyle. Bob is a presenter at every IWMF Educational Forum and he is featured in many issues of the Torch
. He travels from one end of the globe to the other presenting lectures on WM and related cancers. From small support group meetings in church halls in Minnesota to the Stockholm research workshop, he enlightens both the newest patients as well as the veteran medical researchers on subjects of interest. He has received many national and international awards from the most prominent sources in the field of cancer. In the WM world, it is safe to say that he is known as the "godfather of WM," having mentored many doctors who are now involved in WM research and treating WM patients.
Bob Kyle was a friend of Dr. Jan Waldenström, who discovered our disease. He is also a friend to Dr. Waldenström’s son, Dr. Anders Waldenström. Dr. Kyle is a special advisor and friend to the IWMF Board of Trustees. He is a charter member of the IWMF Scientific Advisory Committee and has been the Chair of that committee for more than five years.
Dr. Kyle has not only treated many WM patients in his long career but is also a pioneer researcher in WM. We owe Bob Kyle our highest respect and appreciation for his continued interest in our disease.
As a tribute to his outstanding contributions to the IWMF and its entire membership, the Board of Trustees of the IWMF has established the Dr. Robert A. Kyle and Mrs. Charlene M. Kyle Endowment Fund
– the first endowed fund of the IWMF. The annual income from this fund will be used for activities, strategies, and programs associated with the IWMF Research Fund as determined by the IWMF Board. Please click here to give to the R.A. and C.M. Kyle Endowment Fund.
NAMING OPPORTUNITIES FOR INDIVIDUALS »
Projects or programs in tribute to a person or in memory of a patient are provided through the tribute and memory cards mentioned above, usually at a comparatively lower level of giving. The 5-in-5 campaign provides a naming opportunity for individuals (patients, doctors, past and current Board members, caregivers, etc.) at a higher level. Endowment options may be considered in this area. See the Dr. Kyle Fund for an example. If you have an interest, please click here to initiate an Individual Naming Opportunity.
Recommended funding range:
ESTATE OR PLANNED GIVING »
In general, estate or planned giving options fall under three categories: bequests (estate gifts), life income, and other planned giving vehicles. If you would like additional information, please call Dave Benson at 952-837-9980.
ESTATE GIFTS (BEQUESTS)
You can use your will or bequest, a codicil to your will, or alternatives to wills such as your IRA or pension plan to leave a permanent legacy for the IWMF.
Some Definitions: Bequests are made in wills, codicils, living trusts, and other estate plans whereby money, property or both are given to a nonprofit organization. A codicil is a written change or amendment to a will. A bequest or codicil could take the form of a fixed amount or a percentage of your estate plan.
Examples: “I give, devise and bequeath to the International Waldenstrom’s Macroglobulinemia Foundation, a nonprofit foundation located in Sarasota, Florida, [dollar amount or percentage] to be used for its __________purposes. I further direct that interest or other income which may be earned by said bequest shall be paid to IWMF from the date of my decease until paid.”
LIFE INCOME GIFTS
Life income gifts offer the donor income for life or for a specified term of years after making an irrevocable gift to the IWMF.
Example: A Charitable Remainder Trust provides income to the donor’s beneficiaries and the remainder to the IWMF. Payments are determined annually and depend on the value of the trust assets as recalculated yearly.
Example: A Gift Annuity provides the donor with a contractual promise of fixed income each year. The payout rate depends upon the age of each beneficiary at the time the gift is made and when the payments begin. Payments can be deferred for several years.
OTHER PLANNED GIFTS
Here are three examples of other planned gifts to IWMF:
- A Life Estate provides the IWMF with a gift of residence or farm while allowing the donor the right to continue to live there for the remainder of his or her life.
- A Charitable Lead Trust provides the IWMF with income for a term of years and leaves the remainder to the heirs of the benefactor.
- Life Insurance designations allow a charity to receive benefits upon the death of the insured.
IMPORTANT NOTE: We greatly appreciate your interest in providing financial support for the IWMF and strongly encourage you to see your attorney or tax advisor as you put your plans on paper.
BEN RUDE HERITAGE SOCIETY »
The Ben Rude Heritage Society is so named in recognition of the second president of the International Waldenstrom’s Macroglobulinemia Foundation (IWMF). Ben Rude served as president for over four years before he passed on in January 2005, but his legacy continues thanks to the leadership demonstrated by the members of this society. Join other members of this honorary society and help make Ben’s dream of a cure for Waldenstrom’s macroglobulinemia (WM) come true. Ben’s spouse, Laurie Rude, serves as the founding Honorary Chairperson of the Ben Rude Heritage Society.
This society was established by the Board of Trustees in 2008, and its founding members were recognized during the 2008 IWMF Educational Forum in Los Angeles. Each year the Trustees are pleased to honor new members of this society who have followed Ben’s legacy of leadership with various types of deferred gifts to the IWMF such as a bequest, a gift annuity, a trust arrangement, an insurance policy, or a similar planned gift.
A legacy gift is the ultimate expression of support for the IWMF. Through your planned estate gift and your participation in the Ben Rude Heritage Society you can touch the lives of others as we strive to find the cause and a cure for WM. Nearly 1 million dollars have been pledged or received after only two years. Placing your treasure in the care of our Foundation will ensure benefits for others long into the future. As Ben shared often, “A person’s life is measured by the effort made for the benefit of others.”
If you would like to include the IWMF in your estate plans, please call Dave Benson, Senior Development Officer, at 952-837-9980.
Please click here to download a copy of The Ben Rude Heritage Society enrollment form.
As a nonprofit organization under Section 501 (c)(3) of the Internal Revenue Code, the IWMF will issue tax receipts for all gifts.