Did you know?

The IWMF raised more than five million dollars for WM medical research

Did you know?

The IWMF raised more than 60 support groups in North America and nearly 20 others world-wide

Did you know?

The IWMF has a current worldwide membership of nearly 4,000

Did you know?

IWMF-TALK is a wonderful place to share information and learn from other survivors

Did you know?

Each year 1,500 new cases of Waldenstrom's macroglobulinemia are diagnosed in the USA

Did you know?

Volunteers at the IWMF Telephone Lifeline are waiting to share their experiences with you

Did you know?

You can order DVD recordings of past WM Educational Forums online or by mail

Did you know?

All IWMF programs and services are funded by WM survivors, caregivers, friends, and family

Bank of America Chicago Marathon Charity Program - Run for WM

 

On October 12, 2014, Ryan Scofield and his friends ran in the Chicago Marathon on behalf of raising funds for the IWMF - read about his experience on his blog here.

 

 

The race may be over, but if you wish to donate in honor of Ryan Scofield or any of his team of runners in the

2014 Chicago Marathon - click here to complete the online form, or to print and mail a giving form

(please make sure you note that it's in honor of Ryan or one of the other runners listed below)!

 

 

The Bank of America Chicago Marathon hosts thousands of runners who choose to make their Chicago Marathon experience more meaningful by running on behalf of a charity. These runners begin the training season with goals for personal bests in their marathon time as well as in fundraising dollars. With every step you take and every dollar you raise, you can help the IWMF provide vital support and information to patients, caregivers, and medical professionals, and to pursue basic science research that can lead to better treatments and a cure for WM.  In 2013, over 10,000 charity runners participated in the Chicago Marathon on behalf of more than 140 local, national and global causes.

 

Ryan Scofield, a Waldenstrom's patient, ran in the Chicago Half Marathon in 2012 raising money for IWMF. He is planning on organizing his family and friends to run for the IWMF in the upcoming Bank of American Chicago Marathon 2014 (on October 12).  This will be our first year as a designated charity for this popular Marathon. We are happy to have our "orphan" disease now represented in the special event thanks to Ryan's efforts. (Scroll below to read Ryan's personal story.)

In the meantime, why not support the 2014 runners in the Chicago Marathon who are running to benefit the IWMF?  Just click here, and complete the online form, and make sure that you designate that your gift is in honor of Ryan Scofield (or any other runner listed below)....that way we can track how much money is being raised by participants on behalf of the IWMF.

List of runners, and how much they've raised thus far:

 

Chicago Marathon Participants -

Funds Raised (through 10 Oct, 2014) for the IWMF

Runner Amount Raised
Jarad Bingham 26.20
William McMillin 370.00
Nadia Burke 805.00
Terry Bingham 0.00
 Ryan Scofield $11,370.00

 

 

Ryan Scofield's Personal Story:

   

In 2010, I was diagnosed with Waldenstrom's macroglobulinemia.  After six months of treatments, my symptoms were on the run.  Hemoglobin was up.  Bad proteins were down.  Things were looking good.  It was the result of hundreds and thousands of people working together.  Tons of people all working to help people like me survive.  I feel extremely blessed for that.

 

So I wanted to do something to help; to be part of the cure for myself and the people who will get diagnosed in the future.  I ran the Allstate Half Marathon with some friends and raised almost $7,000 for IWMF who have helped me and so many other people.  My donations didn't end up in a huge pool of money, it went directly to research funding for Waldenstrom's Macroglobulinemia.

This time around I'm shooting for a full marathon in one of the world's biggest, the Bank of America Chicago Marathon.  I've got four team mates and we're an official charity, so all of the donation money goes to IWMF.  We're also getting real exposure for a disease no one has ever heard about.


Now that I've been living with this disease for a few years, I'm motivated to raise more money because in just a few years I've already seen the technology improve.  New drugs are coming to market that will make a direct impact on my own longevity.  But the drugs don't invent themselves, so I'm hoping you can help me continue to push things forward.

Imagine a Cure

Be the Cure.  Thanks.

My family blog for those who might want to read more:  http://mckimscofield.blogspot.com

 

Jarad Bingham's Personal Story:

 

In what sems like another lifetime, before our educations led us off to careers in different cities, before kids and marriage and 40,000 things to do besides keep up with old pals, Ryan was my best friend.  Best friends don’t come around very often after the third grade, and when they do, the bonds that form outlast a lot of inertia.

Ryan’s diagnosis took my breath away.  In my work, life altering moments aren’t rare, but in the face of this cancer I found myself at a loss for any meaningful thing to do or say.  i’ve never run a marathon, but the longness of it seemed to fit the long hope of fighting cancer and the togetherness of it seemed to do what i couldn’t find words for.

I know everybody is just degree or two removed from a story like ours.  The hope in humanity is not so much in common suffering but in creative, courageous responses to all kinds of hurt...sounds like a marathon.  i’m looking forward to Chicago, and i hope you’ll join the fight. 

 

Terry Bingham's Personal Story:

 

I am a surgeon.  I deal with chronic and many times fatal diseases all the time.  I love it when we get a cure..   We give a life back.   In surgery, we cut out the bad and let the good survive.   In malignant diseases or metabolic disorders or systemic processes, you often cannot cut it out.   I have been in medicine long enough to see us "cure" some diseases and even eradicate a few.  Even some malignancies (some lymphomas and leukemias for example)  are now being controlled or cured.    Needless to say, I see the results in my patient population and most all of us have been touched by some disease as mentioned above.  Therefore if I can do something to advance a cause or raise awareness or provide research funding, I am anxious and happy to do so.  I believe the future is in genetic manipulation to allow our bodies to cure themselves.  So I run for a cure, for a life, for disease control.....for you.   I have a grandson with unresectable astrocytoma of the medulla so I know the need for research.   I run for him.

 

Nadia Burke's Personal Story:

 

When my step-mother-in-law asked me to join Team in Training and run a 1/2 marathon with her in 2011, I was less than enthusiastic about teh idea.  She said Team in Training (TNT) was a great group and they raise money for the Leukemia and Lymphoma Society (LLS).  I knew it was for a good cause, and I definitely needed some exercise, but a 1/2 marathon?  I wasn't convinced at all, but she told me to think about it.

 

 

Within a week, I found out that my good friend, Ryan Scofield, had been battling with a rare form of cancer, Waldenstrom's macroglobulinemia.  He and hsi wife also just had their first child, Arthur.  I couldn't imagine what they were going through.  Next time I was asked to join TNT I did not hesitate -- I needed to do something to support them.  They were my first call after I finished the Nike Women's 1/2 Marathon in San Francisco that October.  I loved it so much I ran several 1/2 marathon races for LLS since then, and hope that some of the funds went to support finding cures for Ryan's disease.

 

But LLS is such a huge organization, it's hard to control where the funds go.  While every penny helps further the research for cancer treatmetns in some way, I wanted to see more funds go twards specific research and support for his rare form of lymphoma.  So, this time I am supporting him and the IWMF by running the 2014 Chicago Marathon with him!  I thought it was insane to try to run a full marathon, but thought back to 2011 when I thought it wsa impossible to run a 1/2.  Where there is a will, there is a way!

 

Please help us fund research for treatments for this incurable disease.  Read more about my experience running for charity at: http://nadiaphburke.weebly.com/philanthropy-and-phitness.html.

 

Billy McMillin's Personal Story:

 

My name is William (Billy) McMillin, and I am excited to run the 2014 Chicago Marathon through a charity for Waldenstrom’s macroglobulinemia.  Last year, my nephew was diagnosed with brain cancer, so cancer has been a part of my life as well.  I am excited to run for Waldenstrom’s macroglobulinemia, particularly because I believe there are many possible future treatments for this type of cancer. Charitable donations can help find the cure!

 

This will be my second marathon.  I previously ran one in Knoxville, TN in 2011 and am looking forward to Chicago!