Did you know?

The IWMF raised more than five million dollars for WM medical research

Did you know?

The IWMF raised more than 60 support groups in North America and nearly 20 others world-wide

Did you know?

The IWMF has a current worldwide membership of nearly 4,000

Did you know?

IWMF-TALK is a wonderful place to share information and learn from other survivors

Did you know?

Each year 1,500 new cases of Waldenstrom's macroglobulinemia are diagnosed in the USA

Did you know?

Volunteers at the IWMF Telephone Lifeline are waiting to share their experiences with you

Did you know?

You can order DVD recordings of past WM Educational Forums online or by mail

Did you know?

All IWMF programs and services are funded by WM survivors, caregivers, friends, and family

We respect and are committed to protecting your privacy. For this very reason we have adopted the following Privacy Policy. The Privacy Policy lets you know how your personal information is processed and explains data collection and use practices for the IWMF website. The "IWMF Website" includes all web pages, newsletters, discussion forums and lists,  and opt-in announcement lists owned or operated by the International Waldenstrom’s Macroglobulinemia Foundation (collectively hereafter "IWMF") and each of its wholly-owned subsidiaries (collectively the "site"). By accessing the IWMF website, you are consenting to the information collection and use practices described in this Privacy Policy.


We promise that we will use your personal information only in ways that are compatible with this Privacy Policy as follows:


Do you collect IP addresses?


Every computer connected to the Internet is given a domain name and a set of numbers that serve as that computer's "Internet Protocol" IP address. When a visitor requests a page from any website within the IWMF website, our web servers automatically recognize that visitor's domain name and IP address. The domain name and IP address reveal nothing personal about you other than the IP address from which you have accessed our sites. We use this information to examine our traffic in aggregate and to investigate misuse of the IWMF website by its users, or to cooperate with law enforcement. We do not collect and evaluate this information for specific individuals. Our web servers do not automatically record e-mail addresses of the visitors.


What are cookies?


From time to time, a "cookie" may be sent from the IWMF website to your computer. A cookie is a small piece of data that is sent to your Internet browser from a web server and stored on your computer's hard drive. A cookie can't read data off of your computer's hard disk or read cookie files created by other websites. Cookies do not damage your system. We use cookies to identify which areas of IWMF's network you have visited or customized, so those pages may be readily accessible the next time you visit. We may use this information to better personalize the content, banners, and promotions that you see on our site. You can choose whether to accept cookies by changing the settings of your Internet browser. You can reset your browser to refuse all cookies or to allow your browser to show you when a cookie is being sent. If you choose not to accept these cookies, your experience at our site and other websites may be diminished and some features may not work as intended.


How do you use single-pixel gifs?


The IWMF and its third party service providers may use single-pixel gif images, sometimes referred to as web bugs or web beacons, to count web page accesses and gather some general statistical information. The IWMF does not gather personal information through the use of these images. Our third party providers may use single-pixel gifs that can track personal information from cookies that may have been previously placed on a user's computer. The IWMF also uses various third party providers to track and analyze non-personally identifiable aggregate usage information from visitors to our websites in order to continuously improve the quality of our sites and services to you.


What personal information do you collect?


We will ask you when we need information that personally identifies you (personal information) or allows us to contact you. The personal information we collect may include your name, title, company or organization name, e-mail address, phone number, work or home address, information about your job function, and information about your company.


The IWMF may also offer access to some services that require registration. We may use your registration contact information to send notification to you of products and services by e-mail and/or postal mail. We may also use your IP address internally and share it with third parties.


Will you disclose the information you collect to outside third parties?


We do not sell, rent, or otherwise give your personal information address to a third party, without your consent or as permitted by this Privacy Policy. IWMF will disclose personal information and/or an IP address:


  • To contact you regarding other products and services which may be of interest to you (including those we may offer jointly with other companies). At any time, however, you may opt out of such contact by e-mailing us at ;
  • To our subsidiaries, affiliated companies, or other trusted businesses or persons for the purpose of processing personal information on our behalf.
  • When required by law or in the good-faith belief that such action is necessary to:
    • cooperate with the investigations of purported unlawful activities and conform to the edicts of the law or comply with legal process served on the IWMF;
    • protect and defend the rights or property of the IWMF website and related properties or visitors to the IWMF website;
    • identify persons who may be violating the law, the IWMF Website User Agreement, the rights of third parties, or otherwise misusing the IWMF website or its related properties;
  • When we have your consent to share the information.

We may share with third parties certain pieces of aggregated, non-personal information, such as the number of users who searched for a particular location, for example, or how many users clicked on a particular link. Such information does not identify you individually. “Aggregated non-personal information” is information that is recorded about users and collected into groups so that it no longer reflects or references an individually identifiable user.


Your Consent to This Agreement


By using the IWMF website, you consent to the collection and use of information by the IWMF as specified above. We reserve the right to modify this policy at any time and without notice. The most current version of the Privacy Notice is always the version that is published on this website.


Please send any questions about IWMF's Privacy Policy to: .


Please note that your use of the IWMF website is governed by our Web Site User Agreement.