Did you know?

The IWMF raised more than five million dollars for WM medical research

Did you know?

The IWMF raised more than 60 support groups in North America and nearly 20 others world-wide

Did you know?

The IWMF has a current worldwide membership of nearly 4,000

Did you know?

IWMF-TALK is a wonderful place to share information and learn from other survivors

Did you know?

Each year 1,500 new cases of Waldenstrom's macroglobulinemia are diagnosed in the USA

Did you know?

Volunteers at the IWMF Telephone Lifeline are waiting to share their experiences with you

Did you know?

You can order DVD recordings of past WM Educational Forums online or by mail

Did you know?

All IWMF programs and services are funded by WM survivors, caregivers, friends, and family

Boards and Committees

Following is a list of the IWMF Officers and Trustees and their committee assignments:



  • Michael Sesnowitz, Vice President for Fundraising, Richmond, VA,
    Executive Committee; Chair, Fundraising Committee; Chair, Imagine a Cure Advisory Committee, Governance Committee


  • Peter DeNardis, Aliquippa, PA,
    Webmaster; Chair, Information Technology Committee; Co-Chair, Patient Database Team; Publications Committee; Talk-list Manager
  • Marlyn Friedlander, Seattle, WA,
    Fundraising Committee, Imagine a Cure Advisory Committee
  • Suzanne Herms, Mt. Pleasant, SC,
    Research Committee; Chair, Publications Committee; Co-Chair, Patient Database Team; Ed Forum Committee; Associate Torch Editor
  • Marcia Klepac, Pittsburgh, PA,
    Chair, Support Group Committee
  • Robert A. Kyle, M.D., IWMF Board Advisor, Rochester, MN,
    Director, Scientific Advisory Committee; Research Committee; Imagine a Cure Advisory Committee

  • Ronald Yee, West Chester, PA,
    Finance Committee; Research Committee; Investment Committee; Ed Forum Committee; Information Technology Committee; Judith May Volunteer of the Year Award Committee

 President Emerita

  • Judith May, Napa, CA,
    Chair, WMUS Advocacy Committee; Research Committee



IWMF Scientific Advisory Committee

  • Stephen Ansell, M.D. Mayo Clinic, Rochester Minnesota
  • Bart Barlogie, M.D., University of Arkansas, Little Rock, Arkansas
  • James R. Berenson, M.D., Institute for Myeloma & Bone Cancer Research, West Hollywood, California
  • Morton Coleman, M.D., Weill Cornell Medical College, New York, New York
  • Meletios Dimopoulos, M.D., Alexandra Hospital, Athens, Greece
  • Stanley Frankel, M.D., Columbia University, New York, New York
  • Morie Gertz, M.D., Mayo Clinic, Rochester, Minnesota
  • Irene Ghobrial, M.D., Dana Farber Cancer Institute, Boston, Massachusetts
  • Eva Kimby, M.D., Karolinska Institute, Stockholm, Sweden
  • Robert Kyle, M.D., Mayo Clinic, Rochester, Minnesota
  • Véronique Leblond, M.D., Hôpital Pitié Salpêtrière, Paris, France
  • Gwen L. Nichols, M.D., Hoffman-LaRoche, Nutley, New Jersey
  • Roger Owen, M.D., St. James's Institute of Oncology, Leeds, United Kingdom
  • Sheeba Thomas, M.D., M.D> Anderson Cancer Center, Houston, Texas
  • Steven Treon, M.D., Dana Farber Cancer Institute, Boston, Massachusetts
  • Mary Varterasian, M.D., Ann Arbor, Michigan

 IWMF Research Committee

  • Guy Sherwood, Chair
  • Sue Herms
  • Robert Kyle, MD
  • Guy Sherwood, MD
  • Ron Yee
  • Judith May
  • Tom Myers, volunteer
  • Michael Greene, volunteer
  • Tom Hoffmann, MD, volunteer
  • John Paasch, volunteer
  • Liane Stafira-Cochran, volunteer