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About Us

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is a patient-founded and patient-led, nonprofit organization that is dedicated to a simple but compelling vision:

Support everyone affected by Waldenstrom's macroglobulinemia (WM) while advancing the search for a cure.

To accomplish this vision, the IWMF offers WM patients, caregivers, family members, and friends six invaluable services:

  • Information from our website and our publications written in a patient-friendly way to promote understanding of our rare disease
  • Education at our annual Educational Forum to help patients and caregivers learn about our disease from WM researchers and clinicians
  • On-going updates about WM and the IWMF sent through our quarterly Torch newsletter and our NEWS releases
  • Peer support from others who’ve been where you are
  • Information for medical professionals who may have limited experience with our rare disease
  • Research directed to better treatments while we search for a cure

Since WM is a rare disease, the IWMF relies upon individuals for financial support and upon volunteers to do much of its work.

Anyone can become a member of the IWMF – to learn how, Join Us.

With the IWMF you are never alone.