If you have specific questions or need to share or compare information about your unique situation, you are welcome to call our dedicated volunteer Telephone Lifeline members.

Patients and caregivers who are willing to share their experiences in specialized areas volunteer to take these calls. In each case, the persons listed below have personal and often extensive experience in the category under which they are listed.

Please understand that these are not doctors or medical professionals and they do not give medical advice or treatment recommendations. However, they often have researched their condition or situation and may be able to assist you in accessing better information or refer you to experts in specific treatments.

If you are a patient with some experience in a specific condition and would like to volunteer to help with the Telephone Lifeline, please contact Jim Bunton at (416) 621-7864 or jbunton@sympatico.ca.   We are especially in need of non-English speakers and Lifeline volunteers in other countries where we do not have IWMF chapters or contacts. If you can, please make a difference and volunteer.  If you would like to volunteer, please contact the IWMF business office at 941-927-4963 or info@iwmf.com.

If you can't get to a local support group meeting, use our IWMF Telephone Lifeline to call a WM veteran.


THE LIFELINE

 

 

2-CdA

Norm Spector 858-454-6313

2-CdA WITH RITUXAN

Bernard Swichkow 305-670-1984

CAREGIVING

Lynn Bickle 805-492-4927

Brad Alexander 972-529-2002

CHLORAMBUCIL

                                  Dave Lively 608-783-4552

                                  Ron Romeis 610-724-3481

                                  Jerry Berman 416-925-6715

 CLINICAL TRIALS

Tom Hoffmann 501-868-8305

Guy Sherwood 765-282-4377

CRYOGLOBULINEMIA

Fay Langer 973-464-6696 

FLUDARABINE

Peg Horton 253-874-8820

                                 Dave Lively 608-783-4552

FLUDARABINE AND CYCLOPHOSPHAMIDE (CYTOXAN)

Penni Wisner 415-552-6579

FLUDARABINE WITH RITUXAN

Marty Kopin 310-390-1546

Jerry Block 301-460-9799

LATEST RESEARCH

Bert Visheau 905-528-1789

NEWLY DIAGNOSED

Guy Sherwood 765-282-4377

Norm Spector 858-454-6313

Sallie Moore 516-795-3746

ORAL CYTOXAN

Lou Birenbaum 314-961-5591

PLASMAPHERESIS

Fred Bickle 805-492-4927

 

RITUXAN

Charles Vassallo 201-947-6977

James Townsend 352-376-3664
                             
                                  Allen Weinert 603-863-5347
                                                         760-568-2918

SOCIAL SECURITY DISABILITY

Howard Prestwich 815-233-0915

 

SPLENECTOMY

Kathleen Ugenti 631-470-0971

 

STEM CELL TRANSPLANT

Howard Donley 307-587-3397

Sybil Whitman  506-450-3970

 

THALIDOMIDE

 Mel Horowitz 518-449-8817

 

VELCADE

 Jeff Atlin 905-731-7756

VETERANS

                                  Jerry Fleming  972-867-5102

WATCH AND WAIT

Mel Horowitz 518-449-8817

Renee Paley-Bain 203-744-7851

Polly Oldberg 513-932-7486

YOUNG WM

Nobby Riedy 650-879-9104

Bob Bailey 770-664-8213

HEARING IMPAIRED TTY FACILITY

                                 
Betty McPhee  905-775-3413

 
UNITED KINGDOM LIFELINE

UK WM FORUM ONLINE

    Raphael Altman

    raltman@btinternet.com

2-CdA

     Roger Brown +44 01285 650107

rogerbrown961@btinternet.com 
 

CHLORAMBUCIL

John Povall +44 1606 833022

jpovall@mmm.com

FLUDARABINE

Ken Rideout +44 1278 782108

ken@4rosetree.fs.co.uk

FLUDARABINE AND CYCLOPHOSPHAMIDE

John Povall +44 1606 833022

jpovall@mmm.com


FLUDARABINE AND RITUXIMAB

Mike Dewhirst +44 1323 841735

dewhirst_6@hotmail.com

OPTHALMOLOGY

Terry Betts +44 01992 583643

tjb-planning@freeuk.com

PLASMAPHERESIS

Roger Brown +44 1285 650107

rogerbrown961@btinternet.com

RITUXAN

Nigel Pardoe +44 0208 326 3270 
      pardoe@aol.com

  SWEDEN/NORWAY

    
Anne Odmark 46 018-14 05 13
     anneodmark@privat.utfors.se

  GERMAN SPEAKER

Roy Parker (Colorado , USA) 303-470-6699
     roypar@comcast.net

     Sybil Whitman (New Brunswick, CANADA)  506-450-3970
     hcouture@nbnet.nb.ca

  DUTCH SPEAKER 

    
Lia van Ginneken-Noordman 
     ginneken.noordman@wxs.nl

  SPANISH SPEAKER

Peter Mitro  440-247-3460 
     stonehill@earthlink.net

      Betsy Beazley  510-527-5827
      betsybeazley@gmail.com

      Gladys Mendieta  215-860-9216
      Gladysmendieta@aol.com

   FRENCH SPEAKER

     
Guy Sherwood  765-282-4377
     guysherwood@comcast.net

     Sybil Whitman (New Brunswick, CANADA)  506-450-3970
     hcouture@nbnet.nb.ca