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If you have specific questions or need to share or compare information about your unique situation, you are welcome to call our dedicated volunteer Telephone Lifeline members. Patients and caregivers who are willing to share their experiences in specialized areas volunteer to take these calls. In each case, the persons listed below have personal and often extensive experience in the area for which they are listed. Please understand that those listed are not doctors or medical professionals, and they do not give medical advice or treatment recommendations. However, they often have researched their condition or situation, and may be able] to assist you in accessing better information or refer you to experts in specific treatments. If you are a patient with some experience in a specific condition, and would like to volunteer to help with the Telephone Lifeline, please contact Jack Gelber, Lifeline Coordinator at (212) 995-9613 or jackgelber@msn.com. We are especially in need of non-English speakers and Lifeline volunteers in other countries where we do not have IWMF Chapters or contacts. If you can, please make a difference and volunteer.
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Stem Cell Transplant Howard Donley (916) 422-9562 Davell Hays (530) 295-1344 Gregg Jarrett (630) 243-8121 Splenectomy Kathleen Ugenti (631) 427-8265 Oral Cytoxan Lou Birenbaum (314) 961-5591 Plasmapheresis Fred Bickle (805) 492-4927 Arlou Brahm (203) 264-7995 Watch and Wait Reg Morgan (509) 633-1579 Renee Paley-Bain (914) 277-7851 Polly Oldberg (513) 932-7486 Diagnosed at Young Age Nobby Riedy (650) 879-9104 Bob Bailey (770) 664-8313 |
Latest Research Bert Visheau (Canada) (905) 528-1789 Caregiving Lynn Bickle (805) 492-4917 Brad Alexander (972) 529-2002 UNITED KINGDOM Lifeline Rituxan Nigel Pardoe 0208 840 9812 Pardoe@aol.com Fludarabine Ken Rideout 1278 782108 Ken@4rosetree.fs.co.uk Stem Cell Transplant Pam Bell 1403 267164 Abel92698@aol.com Chlorambucil John Povall 1606 833022 jpovall@mmm.com Opthamology Terry Betts 01992 583643 tjb-planning@freeuk.com FRANCE and French Speakers |
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