IWMF Member Services
The mission and purpose of the IWMF was initially conceived to provide encouragement and support to patients with Waldenstrom’s macroglobulinemia (WM) and their families, and Member Services continue to be the major focus of the foundation.
The IWMF Member Services Program seeks to fulfill this mandate by providing the WM community with educational resources relevant to WM and by facilitating open communications between members and interested individuals.
Currently offered member services are listed below:
IWMF Annual Educational Forum
The popular IWMF “Ed” Forum is held each spring in the United States. The choice of location is predicated on accessibility to as many WM patients as possible, and is currently rotated between different geographical areas of the United States (for example: Las Vegas 2002, Richmond, VA 2003, Chicago 2004, Tampa 2005, Seattle 2006, Atlanta 2007, and Los Angeles 2008). The Ed Forum is attended by approximately 300 patients and caregivers and features educational presentations from prominent clinicians, allied health professionals, and researchers in the field of WM. The latest treatment therapies and research findings are presented annually. The Ed Forum also provides a “homecoming” venue for returning Ed Forum attendees. (Annual Educational Forum)
Publications
- Newsletter and Bulletins
The quarterly newsletter, the IWMF Torch, and special issue Bulletins are mailed to over 3,000 patients and caregivers and approximately 800 medical professionals in the world. The “Torch” contains articles of general interest as well as a list of resources for WM patients and caregivers. Back issues of the Torch and special Bulletins are available for viewing and download on this website.
(Quarterly Newsletter - IWMF Torch)
2. Booklets
Special interest booklets are available in hard copy form by contacting the IWMF. These include:
- Living with Waldenstrom’s Macroglobulinemia (our handout leaflet)
- Waldenstrom’s Macroglobulinemia Treatment Options (revision in late 2007)
- Waldenstrom’s Macroglobulinemia Questions and Answers
- Waldenstrom’s Macroglobulinemia Review of Therapy (revision in late 2007)
- Reports from the Second and Third International Workshops on Waldenstrom’s Macroglobulinemia
- An Introduction to Basic Immunology in Waldenstrom’s Macroglobulinemia
- Medical Tests in Waldenstrom’s Macroglobulinemia & Comprehensive Glossary of Selected Terms in Waldenstrom’s Macroglobulinemia
- Healthy Living with WM
- Report from the Fourth International Workshop on Waldenstrom’s Macroglobulinemia (available in late 2007)
The IWMF also makes available to all interested individuals various selected booklets from other cancer organizations, such as the booklet “Taking Part in Clinical Trials – What Cancer Patients Need to Know,” from the National Institutes of Health, National Cancer Institute. Contact the IWMF office for a list of available booklets from this and other organizations or access links to these organizations from this website.
(Resources)